If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Myectomy bound!

Collapse

About the Author

Collapse

HocumFocus Find out more about HocumFocus
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • gfox42
    replied
    Re: Myectomy bound!

    Sorry to hear that you had to go through this!

    You may want to consider having an ablation for atrial flutter at some point. I did, nearly two years ago, and haven't had any atrial flutter since. That also allowed me to eventually come off the antiarrhythmia drugs. The chance of success for flutter ablations is quite high.

    In the meanwhile, I certainly hope they gave your ICD some more appropriate settings!

    Gordon

    Leave a comment:


  • ninelives
    replied
    Re: Myectomy bound!

    Wow very sorry to hear about that! Having multiple zaps is the last thing anyone wants. Hope you're better now!

    Leave a comment:


  • HocumFocus
    replied
    Re: Myectomy bound!

    Been a tough week. Afer 14 weeks of textbook recovery, our household was hit with a stomach flu virus (noro most likely) and I was the last one to get hit just a few days after Xmas. After a night of talking to the great white telephone, I was starting to feel better, stood up and WHAM, got hit with a shock, followed every few minutes by more--!17 in total until I got the hospital! Long and short, a 911 call and emergency visit, admission overnight, EP and cardiology consultation, etc. they determined it was a run of atrial flutters that due to a couple of funky ICD parameters and thresholds was trying to treat inappopriately. Some amiodarone calmed the rhythyms down and I was pretty good (except for the flu but I suspect that the IV fluids helped out there). Made it home for a quiet new years eve. EP followup in 4 weeks and on amiodarone for now. There was some talk of starting Coumadin but I am not really big on that (some prior bleeding issues) and have decided to talk to cardiologist about wating to see what the 4 week EP check on the ICD monitoring shows before taking that step. Will be increasing aspirin therapy a bit in the meantime. Oh well, sometimes it's one step forward and two steps back, huh?

    Leave a comment:


  • mtlieb
    replied
    Re: Myectomy bound!

    Great news... you certainly have much to be thankful for this holiday season.

    I know exactly how you feel regarding the sudden absence of disability. I was in and out of heart failure for years but for reasons that even my doctors cannot fully explain I have now found myself virtually symptom-free and able to do pretty much anything I want. It's been a hard adjustment to make after being in the disabled mindset for so long. When you're at your low point with HCM you kinda settle into the prospect that this is how it's gonna be for the rest of your life and you learn to accept it. But then you suddenly get better and it's like... "NOW what am I going to do for the rest of my life???"

    So glad to hear that you are doing well.

    Jim

    Leave a comment:


  • ninelives
    replied
    Re: Myectomy bound!

    Great to hear!

    Leave a comment:


  • gfox42
    replied
    Re: Myectomy bound!

    Enjoy your extra time off - now that enjoying it is possible!

    Gordon

    Leave a comment:


  • mbcube
    replied
    Re: Myectomy bound!

    Welcome back to the world of the living - Enjoy!

    Leave a comment:


  • HocumFocus
    replied
    Re: Myectomy bound!

    Well, the 10 week mark was yesterday. Absolutely no chest pain or SOB since the surgery which is amazing. Could go back to work now but lots of sick leave benefits and the Christmas break coming up anyway, I decided to wait until the new year. The extra little bit of healing will help too. I think the biggest obstacle I still struggle with is that I need to redefine myself as an able-bodied person. I was so obstructed and so limited in activities, that I defined myself into that little box. Now, that I can get out and do more, I find I really have to prod myself to get out of the house and walk, shop, etc. I know it will come with time but I did find that aspect of recovery interesting and something that others might encounter.

    Leave a comment:


  • gfox42
    replied
    Re: Myectomy bound!

    Congratulations! These minor discomforts take a while to disappear, but it sounds as though you're doing great!

    Gordon

    Leave a comment:


  • HocumFocus
    replied
    Re: Myectomy bound!

    Eight weeks ago today, I was probably being wheeled out of OR and into ICU after my myectomy. Continuing to make slow progress, chest tube wounds are 90% filled in and the main incision looks pretty good--a bit itchy and sore at times, particularly after driving (seat belt). Sneezed today, not too bad but not pain free. Can sleep on my sides at will though, yay!

    Also, the bump at the top of the main incision has pretty much disappeared.

    Has snowed here now so walking has turned into exercise bike sessions, probably get out for some mall walking though. I'm starting to forget what it was like before--the chest pain and SOB at the smallest exertion... who was that person?
    Last edited by HocumFocus; 11-22-2012, 06:24 PM.

    Leave a comment:


  • mbcube
    replied
    Re: Myectomy bound!

    If I can subtract the years I'd have hair & 25lbs less of me!!

    Leave a comment:


  • Reenie
    replied
    Re: Myectomy bound!

    Enjoy the celebration!

    Leave a comment:


  • HocumFocus
    replied
    Re: Myectomy bound!

    Six weeks and in some ways, it seems like so much longer than that. I've read where others talk of feeling a whoosh of feeling better around week 5 or 6 but I've just been experiencing slow but steady progress. Last chest tube wound has healed over and sternum stability is pretty good. Walking is going great and not a trace of the old tight chest pain and SOB no matter the pace! Still a long way to go to work back up to any level of fitness though. I guess slow and steady is not a bad way to go.

    Celebratory Hawaiian family vacation has now been booked for Februray! Hang loose!

    Leave a comment:


  • mtlieb
    replied
    Re: Myectomy bound!

    Originally posted by packman View Post
    7 years past surgery and i still feel 15 years younger than i did prior to surgery the results were amazing....good luck
    Do we get to subtract those years?... because that would make me 34... and that would be way cool.

    Leave a comment:


  • packman
    replied
    Re: Myectomy bound!

    Originally posted by Mertz View Post
    Good luck, and you'll be just fine!! Let us know how it goes.
    Patty
    7 years past surgery and i still feel 15 years younger than i did prior to surgery the results were amazing....good luck

    Leave a comment:

Today's Birthdays

Collapse

Working...
X