I have tried every dosage of metoprolol...to no avail. Still sob, dizzy spells etc...haven't passed out but feel crummy most of the time.
Finally made the 940 mile trip to mayo after being diagnosed three years ago. (I should have been coming every year for a check up.) I saw Dr Ommen today and I will try 120mg of verapamil and if it doesn't work I will be scheduling appt with Dr. Dearani for the myectomy.
I have a consult tmrw with Dr. Dearani to discuss a possible mytectomy. I know that numbers alone may not be the deciding factor but I wanted to throw some numbers out there and see if anyone would comment on what they feel like with their numbers. What constitutes this septal myectomy surgery? A "large" septum? Gradient?, SAM?
Mine is the following:
Septum: 18mm or 1.8cm
Gradient at rest / valsalve = 44 mm Hg; / 77 mm Hg
I do have Systolic anterior motion of the mitral valve leaflets. This is all the numbers I can think of for now.
I know these numbers and how people feel may not be a direct indicator for surgery but I guess I am just looking for someone to tell me "Yea...my septum was only 13 and my gradient was only 30 but I had major symtpoms" or maybe some one might tell me "your being a big baby...your numbers should be worse than that before you consider surgery."
I really am tired of the sob, fatigue, dizziness and not being able to climb stairs or an incline without being give out and very winded. I no longer exercise due to the symptoms from HOCM.
Thanks ahead of time for all the information and encouragement.
Finally made the 940 mile trip to mayo after being diagnosed three years ago. (I should have been coming every year for a check up.) I saw Dr Ommen today and I will try 120mg of verapamil and if it doesn't work I will be scheduling appt with Dr. Dearani for the myectomy.
I have a consult tmrw with Dr. Dearani to discuss a possible mytectomy. I know that numbers alone may not be the deciding factor but I wanted to throw some numbers out there and see if anyone would comment on what they feel like with their numbers. What constitutes this septal myectomy surgery? A "large" septum? Gradient?, SAM?
Mine is the following:
Septum: 18mm or 1.8cm
Gradient at rest / valsalve = 44 mm Hg; / 77 mm Hg
I do have Systolic anterior motion of the mitral valve leaflets. This is all the numbers I can think of for now.
I know these numbers and how people feel may not be a direct indicator for surgery but I guess I am just looking for someone to tell me "Yea...my septum was only 13 and my gradient was only 30 but I had major symtpoms" or maybe some one might tell me "your being a big baby...your numbers should be worse than that before you consider surgery."
I really am tired of the sob, fatigue, dizziness and not being able to climb stairs or an incline without being give out and very winded. I no longer exercise due to the symptoms from HOCM.
Thanks ahead of time for all the information and encouragement.
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