I am 33 and have known about my HCM since age 17. I have had a murmur since birth and was always told it was innocent. I played Field Hockey at the time and was instructed to stop.
I never really took any medication until about age 26. I started having episodes of atrial fib. I am now on the max dossage of Norpace 300mg bid, verapimil 240mg/day, & nadalol 40mg/day. I had to have a pacemaker implated on my birthday last year. To many meds for my body to handle. I made it to the hospital just in time. Heart rate was 26bpm upon arrival. I did stop breathing at one point. I guess God just wasn't finished with me yet.
I just came back from meeting with Dr. Castle and Dr. Lever in Cleveland earlier this week and I am waiting on a date for my surgury. They are telling me that I need to have the Maze procedure done. This means a 5 to 7 stay in the hospital and 6 week recovery at home. The operation scares me. I want to be here for my 5 year old daughter and my wonderful husband. I just keep praying this works. I am hopeful to be able to be off of this medicine. It makes me feel terrible. I don't have obstruction but the rhythm problem is making it difficult. I hope this surgury helps. I want to be able to do more vigorous activity without felling like my legs are going to fall off.
Hoping for a better life!!!!
Julie Jackson/KY
Julie Jackson
I never really took any medication until about age 26. I started having episodes of atrial fib. I am now on the max dossage of Norpace 300mg bid, verapimil 240mg/day, & nadalol 40mg/day. I had to have a pacemaker implated on my birthday last year. To many meds for my body to handle. I made it to the hospital just in time. Heart rate was 26bpm upon arrival. I did stop breathing at one point. I guess God just wasn't finished with me yet.
I just came back from meeting with Dr. Castle and Dr. Lever in Cleveland earlier this week and I am waiting on a date for my surgury. They are telling me that I need to have the Maze procedure done. This means a 5 to 7 stay in the hospital and 6 week recovery at home. The operation scares me. I want to be here for my 5 year old daughter and my wonderful husband. I just keep praying this works. I am hopeful to be able to be off of this medicine. It makes me feel terrible. I don't have obstruction but the rhythm problem is making it difficult. I hope this surgury helps. I want to be able to do more vigorous activity without felling like my legs are going to fall off.
Hoping for a better life!!!!
Julie Jackson/KY
Julie Jackson
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