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Lisa Salberg Find out more about Lisa Salberg
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  • #1

    I have had the following procedure...

    Lets see who is here...poll time!
    Choose one please.
    Lisa
    272
    Myectomy
    35.29%
    96
    Alcohol Septal Ablation
    10.29%
    28
    Mitral Valve repair/replacement
    2.21%
    6
    Multiple Alcohol Septal Ablation
    0.74%
    2
    Alcohol Septal Ablation followed by a myectomy
    0.37%
    1
    Myectomy and Mitral valve repair/replacement
    11.40%
    31
    Evaluating my options for upcoming procedure
    23.90%
    65
    none
    16.18%
    44
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)
    Tags: None
    • Stuck
  • #2
    Ok now... I KNOW you guys are here...please take the poll so others know your here too
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    • #3
      Procedure poll

      I've had a myectomy and ICD surgery.

      Comment

      • #4
        Re: I have had the following procedure...

        Originally posted by Lisa Salberg
        Lets see who is here...poll time!
        Choose one please.
        Lisa
        Lisa:

        I had a myectomy. Look forward to talking to you soon.

        Howie

        Comment

        • #5
          Hey Howard,
          How did you make out on your post preocedure follow up?
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

          Comment

          • #6
            Re: I have had the following procedure...

            Hi,

            I have looked around the HCMA archives and internet for some info, with no luck. Can you help me to make decide for surgery

            I am in late fifites and diagnosed with HCAM with obstruction - 8 months ago.

            Toporol 50 and loosing some weights have reduced my dizzinesss to 0-5 per day - depnds what I have eat :P .

            The septum ticknes is about 18 (1.8) and gradinat is close to 30 (while resting).

            I have strongly suggested to have a myctomy, one reason is my age and getting older may make recovery more difficult.

            I would appreciate if you can direct me to some medical papers or help me with your suggestion.

            Thanks a lot,

            Behrang.

            Comment

            • #7
              Re: I have had the following procedure...

              Behrang, I see from another posting, that you are at the Mayo. You are at an excellent facility with vast experience in treating HCM. Ask questions about all options until you understand everything you want to know. They can provide papers or direct you to their medical library for the info. Also, email the HCMA office or call direct and Lisa can provide info for you. Let us know how things are going. Best wishes, Linda

              Comment

              • #8
                Re: I have had the following procedure...

                The choice to have a procedure is a complicated process... and one that should be carefully discussed with those in centers that provide care to HCM patients on a regular basis.
                I would suggest seeking out a specialist, having a consultation and then looking at your options.
                If you need us...just call.

                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment

                • #9
                  Re: I have had the following procedure...

                  Evaluating my options for upcoming procedure

                  Comment

                  • #10
                    Re: I have had the following procedure...

                    I have had Myectomy and valve repair Dec. 9-03 and doing grrrrreat.

                    Comment

                    • #11
                      Re: I have had the following procedure...

                      Alcohol Ablation - April 7th/2004
                      Tammy

                      Comment

                      • #12
                        Re: I have had the following procedure...

                        My husband had alcohol septal ablation - November 20, 2003. Doing well.

                        Paula

                        Comment

                        • #13
                          Re: I have had the following procedure...

                          I have also had a mitral and aortic valve replacement and a myectomy.and the EP procedure for Wolfe Parkinson White
                          April
                          Mitral & Aortic valve replacement w/St. Jude valve HOCM -myectomy 6/21/04
                          EP Procedure 4-19-04 Wolfe Parkinson
                          Heart Attack 4-19-04
                          Stroke 6-03
                          Bacterial Endocridites 6-03

                          Comment

                          • #14
                            Re: I have had the following procedure...

                            I've had 3 mitral valve replacements due to rheumatic fever as a child, and will be having my fourth sometime in the future. Date of surgeries:

                            August14th, 1975 at the age of ten

                            April16th, 1980 at the age of 15

                            December19th, 1995 at the age of thirty

                            Débora from Brazil
                            http://uk.geocities.com/deboraginastewart1
                            http://uk.f2.pg.photos.yahoo.com/ph/...art1/my_photos
                            View my heart history too.

                            Comment

                            • #15
                              Well everyone i had a Myectomy Febuary 23rd of 04 and i was doing good in the beginning but my right ventricle became stiff too along with the left ventricle and they said right after surgery i didn't have any regurgitation well now it is back and it would be mitral and tricuspid regurgitation and i'm now being evaluated for a transplant i guess i had to go on to be the 2 to 3% that go on to transplant

                              Shirley
                              Diagnosed 2003
                              Myectomy 2-23-2004
                              Husband: Ken
                              Son: John diagnosed 2004
                              Daughter: Janet (free of HCM)

                              Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

                              Comment

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