If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.

Almost a year


About the Author


wkevind Find out more about wkevind
  • Filter
  • Time
  • Show
Clear All
new posts

  • Almost a year

    Hi all,
    I was just looking back- kind of an introspective review of the past two years.
    "oh what a long strange trip it's been"
    First the not knowing what was wrong and why did I feel like I was dying.
    Then the knowing but not really understanding what HCM was/ is.
    Followed by the rush and confusion leading up to surgery
    Having surgery (while I was scared silly and knowing that this would finally kill me)
    Finding the HCMA family
    Healing my wounds (myectomy and valve replacement)
    Learning about drugs and which ones I could do without
    Finding my voice with my doctors
    Learning to fight and win with BC/BS
    On and on until now, just about one year after the surgery, when I realize that there are times that I don't even think about all of the stuff that has filled the past two years. I find myself instead just living my life....with a smile and a new spring in my step.

    W.Kevin D

  • #2
    Re: Almost a year

    Ditto !!!!!!
    Onward and Upward !

    Diagnosed 4/07 HCM with fixed & dynamic obstruction
    Myectomy with resected cordonae tendonae 4/08 CCF
    ICD 10/08


    • #3
      Re: Almost a year

      Congratulations on your near-anniversaries! Sounds like a big improvement.

      Myectomy on Feb. 5, 2007.


      • #4
        Re: Almost a year

        Touche' !!!
        Diagnosed @ 48
        Saw Dr. Michael Debakey @ age 5 - "He's fine, just a little noisy"
        Father to 3 boys 22, 25, 29 (all currently clear - pending genetics)
        AICD - Valentines Day '08, Spark Plug replaced 11/14
        After much research, I had a Myectomy @ Mayo for my 50th Birthday '08
        Quietly going insane . . .


        • #5
          Re: Almost a year

          Way to go Kevin!
          Dx @ 47 with HOCM & HF:11/00
          Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
          Lead failure,replaced 12/06.
          SF lead recall:07,extracted leads and new device 2012
          [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
          Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
          Genetic mutation 4/09, mother(d), brother, son, gene+
          Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin


          • #6
            Re: Almost a year

            Word up!!!!!!!!!!

            Diagnosed HCM & Bicuspid Aortic Valve 2006
            Diagnosed HOCM 2008
            Myectomy @ Mayo 2008
            "It is what it is!"


            • #7
              Re: Almost a year


              You said it here and I couldn't imagine it could possibly be true... to live without being obsessed with HCM... now the scar reminds me I have it... or I do too much and am reminded I have to slow down.

              Tonight I attended a Sedar dinner with some friends, and was reminded of being freed, how wonderful it is to be freed of being obsessed with HCM, and to learn to just "deal" with it and keep going.

              Spring has sprung all around... Hallelujah

              May you have many more springs in your step AND in your life

              Your grateful friend,
              Diagnosed with HOCM Dec. 2007 at 40
              Myectomy 12/08/08 UoMichigan
              Treated for "Asthma" since 2004 and took Claritin-D every night for 3 years- while my "Asthma" got worse and worse.
              Mother has mild HOCM gradient of 25


              • #8
                Re: Almost a year


                Thanks for sharing!

                Rania, great to hear about how you are doing as well!

                Happy Spring,
                Rich G
                Myectomy and mitral valve repair, April 2007, St. Luke's Hospital (NYC)


                • #9
                  Re: Almost a year

                  Good for you, Kevin!!
                  Thanks for sharing!
                  Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.


                  • #10
                    Re: Almost a year

                    Glad you're all doing well!
                    Spring is such a good time to have this anniversary, to feel like a new lease on life, and to be thankful ....
                    Diagnosed (w/obstruction) 2003 at 39
                    Alcohol Septal Ablation Feb. 2006
                    Myectomy April 2007 Cleveland
                    Pacemaker dependent (no ICD)
                    Thankful and doing fine