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This kind of picks up from my other recent thread on "is there any evidence that meds can stop or even regress HCM.
My question to all of you is how do you know when the meds are working. My prime symptoms are 1) SOB on low level exertion such as climbing stairs or mowing my lawn, and 2) Dizziness on standing.
It sounds as if some of you actually get relief from your symptoms in addition to resting your heart by slowing it up.
When I take the drugs (at least the ones I've tried) I may get some heart relaxation (can't tell), but I don't get any symptom relief....in fact I get dizzier and more SOB.
It has been suggested that perhaps I haven't gone through the three month probationary (and I used that word on purpose) period and at the end of 3 months of taking the meds, the symptoms start to lessen. Is that true or isn't it for you guys. Am I actually to expect some symptom relief from taking these things or am I to expect a relaxation of my heart muscle but the symptoms remain the same. (In other words, I may be prolonging my heart's longevity, but as far a symptom relief - I'm SOL). Just curious.....I read so many good things here I was kind of hoping I'd take the meds, my heart would get a deserved rest and my SOB and Dizziness would let up a little. I was not expecting a free pass or cure, just a bit of a holiday from the worst part of the symptoms.
As you can tell I am starting to get a bit frustrated by the "med" thing. Certainly not taking the meds is an option, but I don't trust that line of thinking....it just makes sense that if your heart works less hard it should last longer.
I still recall one forum member who basically said "forget the meds they make me feel too bad , "I'll take quality of life over quantity, she said".
How about the rest of you....you take the meds and glorious things happen????? Yes..... Or you take them and basically maintain where you were? Or you take them and feel even crappier but hang on......
Hope this all makes sense.
Bucky
My question to all of you is how do you know when the meds are working. My prime symptoms are 1) SOB on low level exertion such as climbing stairs or mowing my lawn, and 2) Dizziness on standing.
It sounds as if some of you actually get relief from your symptoms in addition to resting your heart by slowing it up.
When I take the drugs (at least the ones I've tried) I may get some heart relaxation (can't tell), but I don't get any symptom relief....in fact I get dizzier and more SOB.
It has been suggested that perhaps I haven't gone through the three month probationary (and I used that word on purpose) period and at the end of 3 months of taking the meds, the symptoms start to lessen. Is that true or isn't it for you guys. Am I actually to expect some symptom relief from taking these things or am I to expect a relaxation of my heart muscle but the symptoms remain the same. (In other words, I may be prolonging my heart's longevity, but as far a symptom relief - I'm SOL). Just curious.....I read so many good things here I was kind of hoping I'd take the meds, my heart would get a deserved rest and my SOB and Dizziness would let up a little. I was not expecting a free pass or cure, just a bit of a holiday from the worst part of the symptoms.
As you can tell I am starting to get a bit frustrated by the "med" thing. Certainly not taking the meds is an option, but I don't trust that line of thinking....it just makes sense that if your heart works less hard it should last longer.
I still recall one forum member who basically said "forget the meds they make me feel too bad , "I'll take quality of life over quantity, she said".
How about the rest of you....you take the meds and glorious things happen????? Yes..... Or you take them and basically maintain where you were? Or you take them and feel even crappier but hang on......
Hope this all makes sense.
Bucky
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