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James is now taking Toprol XL 100mg

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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • James is now taking Toprol XL 100mg

    My 12 year old son James who was just shocked two weeks ago by his AICD, is now taking 50mg Toprol in the morning when he gets up and 50mg at night. He is telling me is ALOT more tired and he is also sleeping alot more. He is sleeping 14+ hours. He will be starting back to school in a little over a month and won't be able to sleep this long then. I am just trying to figure out is there anything I can do that won't make him so tired. When he was taking 50mg he was not his tired. Thanks for the info! Janet
    My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

  • #2
    Hi, Janet,

    This is a problem, but it may be more of a good thing than a bad one. My suggestion would be to let him sleep for now and recover from all the stress of the past few months. Many teenagers sleep extremely long hours during the summer. In a few weeks he may adjust to the Toprol and the sleep won't hurt him. If this continues to be a problem when school starts, deal with it then. I will pray that he gets lots of sleep for a couple of weeks and then gets his energy back.

    If he is still sleeping this much when you get closer to the end of summer, talk with the doctor and consider trying a different beta blocker.

    Rhoda

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    • #3
      Janet, Rhoda made a good point. Each time I have had to increase my beta it has caused the same. The increased sedation effect should back off as the adjustment increases. Make sure he takes in very sufficient fluids as he will feel more sluggish if dehydrated and sleeping so much he can not be taking in enough fluid( water , mostly). If things do not stabilize in about 3 weeks alert the doctor. Also , check his BP and Pulse lying and standing , to make sure he is not going too low. Keep track of this during any changes or increases.

      I hope he does better.

      pam
      Dx @ 47 with HOCM & HF:11/00
      Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
      Lead failure,replaced 12/06.
      SF lead recall:07,extracted leads and new device 2012
      [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
      Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
      Genetic mutation 4/09, mother(d), brother, son, gene+
      Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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