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weight gain and HCOM... is it related?

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  • weight gain and HCOM... is it related?

    Hello again

    i forgot to ask, also around the same time i started getting symptoms of HCOM... shortness of breath, fluid on lungs etc.. i also gained weight which i am finding very hard to lose, has anyone else experienced this or do i just need to get off my butt and excersise more.... i take 120 mg verapamil and also 200mg spiractin for the fluid

    if i know it is not a side effect then i think i would be more motivated to try and lose it... and in turn, feel alot better in general

    your feed back would be great if anyone can relate..... thankyou

    Dee
    Dee Sydney Australia

  • #2
    Hi Dee and welcome.

    I cannot speak for all ( though I have read similar from others), but weight gain was certainly the issue for me as well. I had been increasing in the pound department as my symptoms increased and my former doctor told me in spite of rather debilitating symptoms that I needed to push myself harder and work harder and that I did not have a heart problem. I tried to do as he said , trust me as things went I was having a hard time even eating so my metabolism was like nil. I had diabetis also , which he missed for 18 years and severe sleep apnea and I was in full blown CHF off and on weekly( some of the weight was fluid). They kept saying it was pneumonia when my lungs would be effected by the fluid overload.

    When I got myself away from that doctor and had some sophisticated testing by great professionals( specialists), one of the comments was that very many HCM individuals that they see in my condition or deconditioned state from severe symptoms are overweight. That former doctors' reccomendations to "push " myself nearly killed me. I work at the weight it does not budge( I am not able to tolerate a lot of physical activity) but I do try everyday and go to the wall or the mat each day in attemtps to push up my tolerance and stamina, I never accept failure or lose hopefor myself. That's what keeps a lot of us going....and this very supportive site with wonderfull fellow HCMer's.

    Do not beat yourself up , just keep trying as best you can.. Hope this helps.

    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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    • #3
      Hi! I think weight gain is a side effect of not being able to exercise comfortably. Before I had HCM symptoms, I would exercise and then want to do more. After I had it, it was a huge push to do the lightest amount of exercise. Makes sense that I would gain weight.

      However, I don't think this is an excuse to give up---just to stop beating yourself up over it. Eat as healthfully as possible, exercise as much as you comfortably can and then just learn to live with the results.

      Not a perfect solution, but better than hating yourself or hurting yourself by overdoing it.

      Sue

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