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bennett Find out more about bennett
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  • :)

    does anyone take metolazone 5mg i need to take 1 of them when my weight goes up to about 62kg does anyone else take these
    im 20 years old with hcm and just been told i need a heart transplant

  • #2

    Hi Bennett,
    I had a couple of run-ins with Metolazone – as the third diuretic I was taking. The first was Lasix – which is common to a lot of people here, the second was Aldactone.

    I found Metolazone to be very Potassium depleting, and after being on it for one week I found myself in the hospital with my Potassium completely depleted – even though I was taking Potassium pills. I was put on a Potassium drip (It really burns the vein, even a slow drip greatly diluted with saline solution) and also Potassium pills. I also got severe cramps in my legs which made it all but impossible to walk the first day, and barely able to hobble the second day. – And just for fun, I was seriously dehydrated.

    The second time I tried it, it was again the third add on drug (Same mix.) I only took one pill and wound up in the hospital with kidney failure. Admittedly, there were many other factors also at work, but then we all are different anyway aren’t we.

    I would suggest talking to your doctor of possibly using Lasix – (Furosemide) and/or possibly Aldactone (spironolactone). If the doctor feels in your particular case Metolazone is the drug of choice, ask about the possibility of also taking Potassium supplements. In fact it might not be a bad idea to ask about the supplement in any case. (They say that Aldactone is not Potassium depleting.)

    Anyway, good luck – and let us know what happens.


    • #3

      the names of meds differ from the UK to the US so some may not be familuar with this diuretic. Diuretics need to ba taken with caution in HCM. If you have a history of CFH monitoring your weight and taking diuretics when your weight goes up is a good idea - IF your doctor agrees.
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)