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why is it too late fot lisinopril?

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Angelawoods I was diagnosed in 2003, got my icd in 2003 Find out more about Angelawoods
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  • why is it too late fot lisinopril?

    My doctor had me on lisinipril. He took me off the medication. He said

    it would do me more harm than good. He said It was alittle late for that

    medication. I dont know what that means. Am I making more out of it

    than it is?

    Angela

  • #2
    Re: why is it too late fot lisinopril?

    Dear Angela,
    I have no idea what, or how many medical conditions you have. I have no idea if this medication might have interaction problems with some other medication or medications you are now taking, or if the doctor switched you to a different drug he thought might be more appropriate for you. I also have no idea if your doctor is eminently qualified, or a quack.

    I do however have the answer which will fit all the above scenarios - - it is; “Because.”

    It may be of no consequence, or it may be important. The person to ask however is not nuts like me who stay up half the night playing on the computer. The person to ask is your doctor. And now dear friend, I’m going to put my weary head on my pillow – still attached to my body if possible.
    Burt

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    • #3
      Re: why is it too late fot lisinopril?

      Hi, Angela,

      I have no idea why he said it was too late, because the opposite should be true. I can easily guess, however, why he took you off it. Lisinopril is not recommended for typical HCM because it is an ACE inhibitor. As such it stimulates the heart beat increasing the damage to our already overworked hearts. For example, I was on very high doses of lisinopril for several years before being diagnosed with HCM, but was taken off immediately upon diagnosis.

      However, in some people who have gone into burn out or end stage or whatever you want to call it when the heart muscle thins and turns into dialated cardiomyopathy go on ACE inhibitors to strengthen their beats.

      I can't recall from your old persona where you are in this process, but most likely you are in the earlier category as are most people with HCM and your doctor probably did not want to admit that he had made a mistake by putting you on it and making you worse. Just a guess here.
      I hope this helps!

      Rhoda

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      • #4
        Re: why is it too late fot lisinopril?

        It is not a medication that will help in 90% of cases of those with HCM. "too Late" is simply a poor choice of words. "Not the right drug" is more likely what he should have said.

        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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