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Undertreating versus Overtreating

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Cappy HCM and myocardial bridge patient, also have primary progressive MS Find out more about Cappy
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  • Undertreating versus Overtreating

    This seems to be the dilemma my primary cardiologist is having, and it frustrates me to no end.

    I am still a relatively new HCM patient (diagnosed 03/03) but he has yet to come up with the right medication combination that will provide will some relief from the discomfort. I have seen 2 HCM specialist and the only recommendation that they had was an AICD, which I got 08/03.

    I see my cardiologist this Thursday and I feel that while he is doing his best I still find myself in some level of discomfort most of my waking hours. I also have begun to have SOB while sleeping, l which I will try and address as well with him.

    I guess my real question are,
    (a) am I being to hard on myself in wanting some alleviation of discomfort and feeling as if the doctors are not doing all they can.

    (b) am I expecting too much from my doctors (altogether I have seen over a dozen cardiologists, from CHF specialist, ECP, HCM's, etc)

    (c) Is it okay to be angry?

    I really want to find some happy medium and really come to grips with living with a chronic illness.

    I know there are no simple answers, but right now any answer would be great

    greg

  • #2
    Re: Undertreating versus Overtreating

    (a) am I being to hard on myself in wanting some alleviation of discomfort and feeling as if the doctors are not doing all they can.

    No, but you may find that not all of your symptoms will go away, regardless of treatment.

    (b) am I expecting too much from my doctors (altogether I have seen over a dozen cardiologists, from CHF specialist, ECP, HCM's, etc)

    Maybe, maybe not. YOU need to find the best care for YOU, which is not always easy.

    (c) Is it okay to be angry?

    Heck YEH. But dont let it get to you. Think of what you have not what you do not have. We all get angry, we all have days when HCM is really a 4 letter word .

    Take Care!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: Undertreating versus Overtreating

      Hi, Greg,

      If you want a laugh, just go back and read what you wrote - "but he has yet to come up with the right medication combination that will provide will some discomfort." Maybe your typo hit it right on the head! Yeah, sometimes it seems like the docs are just trying to figure out how they can make us have more discomfort, but really they are not (I hope!). Laughing at ourselves and the doctors is a good way to get past the anger we all feel at times.

      Rhoda

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      • #4
        Re: Undertreating versus Overtreating

        Originally posted by Laoshur
        Laughing at ourselves and the doctors is a good way to get past the anger we all feel at times.

        Rhoda
        I fixed my error, doh.

        I suppose you are right

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