This seems to be the dilemma my primary cardiologist is having, and it frustrates me to no end.
I am still a relatively new HCM patient (diagnosed 03/03) but he has yet to come up with the right medication combination that will provide will some relief from the discomfort. I have seen 2 HCM specialist and the only recommendation that they had was an AICD, which I got 08/03.
I see my cardiologist this Thursday and I feel that while he is doing his best I still find myself in some level of discomfort most of my waking hours. I also have begun to have SOB while sleeping, l which I will try and address as well with him.
I guess my real question are,
(a) am I being to hard on myself in wanting some alleviation of discomfort and feeling as if the doctors are not doing all they can.
(b) am I expecting too much from my doctors (altogether I have seen over a dozen cardiologists, from CHF specialist, ECP, HCM's, etc)
(c) Is it okay to be angry?
I really want to find some happy medium and really come to grips with living with a chronic illness.
I know there are no simple answers, but right now any answer would be great
greg
I am still a relatively new HCM patient (diagnosed 03/03) but he has yet to come up with the right medication combination that will provide will some relief from the discomfort. I have seen 2 HCM specialist and the only recommendation that they had was an AICD, which I got 08/03.
I see my cardiologist this Thursday and I feel that while he is doing his best I still find myself in some level of discomfort most of my waking hours. I also have begun to have SOB while sleeping, l which I will try and address as well with him.
I guess my real question are,
(a) am I being to hard on myself in wanting some alleviation of discomfort and feeling as if the doctors are not doing all they can.
(b) am I expecting too much from my doctors (altogether I have seen over a dozen cardiologists, from CHF specialist, ECP, HCM's, etc)
(c) Is it okay to be angry?
I really want to find some happy medium and really come to grips with living with a chronic illness.
I know there are no simple answers, but right now any answer would be great
greg
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