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Pam: CoQ10

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  • Pam: CoQ10

    Pam, (and All)

    It is interesting that you brought up the CoQ10 issue in your post.

    I started taking CoQ10 back in May of last year when i first started taking the Atenolol. My specialist advised against it, simply because there isn't enough data on CoQ10 to support the cost. But having an intrinsic distrust of all doctors, i decided to take it anyway. What i found was that after a couple of weeks, i was feeling absolutely fantastic. However, i never knew for sure whether it was actually the CoQ10 that made me feel so good, or if it was simply that the new beta-blocker (Atenolol) was doing the trick.

    Recently, i've been in the poorhouse and can no longer afford the CoQ10. Let's face it... when you have twenty bucks in your pocket and are faced with the choice of buying a month's worth of macaroni and cheese or a bottle of CoQ10... you go for the mac and cheese. But now i'm beginning to wonder if stopping the CoQ10 suddenly hasn't caused my sudden increase in symptoms. I've read where that can be the case... even if CoQ10 doesn't directly help your symptoms, stopping it suddenly can sometimes exacerbate them.

    I really wish that somebody would, once and for all, do a legitimate study on CoQ10. To my knowledge, none has been performed to date.

    Jim
    "Some days you're the dog... some days you're the hydrant."

  • #2
    Re: Pam: CoQ10

    I took Co Q-10 for probably 6 mos or more. One of my HCM specialists at Mayo recommended it. I could not tell the difference and then another visit to a different specialist same Clinic said really did not need to take it that it would probably not make a difference for me. I think it is like everything else some people react favorably to certain medicines and others do not. With the Co-Q-10 it cannot hurt however. If it makes you feel better stay on it. I did order it on line and found 100 mg cheaper there. Also check out a Sams Club if you have access to one.
    Midge

    Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
    ICD&Pacemaker 1996
    Heart transplant March 19, 2004 @ Mayo Rochester
    Mom of Kaye.

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    • #3
      Re: Pam: CoQ10

      Thanks Midge,

      I think i'm going to start taking the CoQ10 again... i felt better when i was on it, and besides, you can only eat so much mac and cheese. LOL. Thanks for you reply.

      Jim
      "Some days you're the dog... some days you're the hydrant."

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      • #4
        Re: Pam: CoQ10

        Hey Jim, It does make sense as so many things in our system are depleted by the meds that are to help us in one way and leave us short in another. I had a thought regarding the cost of the co-q10. I get all my meds except the atenolol and until I know more the Verapamil from Canada. Actually the atenolol is cheaper in this country then in Canada. I get it at Walgreens online. Well my point is many medications are very much cheaper there then here . I looked up co-q10 it was $34.99 for # 90 of 60mgs & 18.99 for # 60 of 30mgs. I know we are always being told not to get our meds in Canada but when you're poor , you're poor. So my parents and I have been sending to canadapharmacy.com for a year and no problems . I've checked as many of the canada Rx's as I could this was the cheapest and most user friendly and I compared all our meds at price to those in the states again no contest. So every 3 months our shipment comes . You can't get narcotics filled but we don't have those and some things like potassium and insulin you don't need an Rx for. If you check just remember to look under non -prescription and spell it out as co- enzyme q10. Hope this info helps. Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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        • #5
          Re: Pam: CoQ10

          I bought 75 capsules of CoEnzyme Q10, 60mg for $18.89 Canadian, which is approx. $14.27 USD. The brand is Swiss Natural Sources which is manufactured by Swiss Herbal Remedies Ltd., Richmond Hill, Ontario, www.swissherbal.ca .

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          • #6
            Re: Pam: CoQ10

            I have tried Co Q myself, I did not notice any difference after 3 months. I know many people who think that they felt better with the Co-Q, however it is hard to really know if there is any real benefits without a good trial. Maybe someone will take interest and do a study.

            Best wishes,
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

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