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drug-soften heart muscle

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cynthiaG Find out more about cynthiaG
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  • #1

    drug-soften heart muscle

    does anyone know if there is any research being done to come up with a med that can actually soften the heart muscle? It appears that is what causes problems later on, the HCM heart begins to stiffen..wish they would!!
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson
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  • #2
    Re: drug-soften heart muscle

    Sorry but it does not work that way... The "stiffness" normally comes from scar tissue and fibrosis in the heart. To "soften" would do nothing - the trick is to find ways to STOP scars and fibrosis.
    Much is being done to find these answers - when we know more so will you!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

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    • #3
      Re: drug-soften heart muscle

      Cynthia,

      My most recent Echo showed some strange results and they had to check the thickness again against the ECG and other tests. I have actually just got off the phone to my Cardi about shortness of breath at night time. I am already on Frusemide to get rid of any fluid on my lungs but she said they want to put me on another one in case it is the thickness of the wall causing the problem rather than excess fluid.

      Don't suppose anyone knows what this could be as I didn't catch the name?!

      Thanks,
      Tina

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