If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

drug-soften heart muscle

Collapse

About the Author

Collapse

cynthiaG Find out more about cynthiaG
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • drug-soften heart muscle

    does anyone know if there is any research being done to come up with a med that can actually soften the heart muscle? It appears that is what causes problems later on, the HCM heart begins to stiffen..wish they would!!
    \"It is not length of life, but depth of life.\"

    Ralph Waldo Emerson

  • #2
    Re: drug-soften heart muscle

    Sorry but it does not work that way... The "stiffness" normally comes from scar tissue and fibrosis in the heart. To "soften" would do nothing - the trick is to find ways to STOP scars and fibrosis.
    Much is being done to find these answers - when we know more so will you!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: drug-soften heart muscle

      Cynthia,

      My most recent Echo showed some strange results and they had to check the thickness again against the ECG and other tests. I have actually just got off the phone to my Cardi about shortness of breath at night time. I am already on Frusemide to get rid of any fluid on my lungs but she said they want to put me on another one in case it is the thickness of the wall causing the problem rather than excess fluid.

      Don't suppose anyone knows what this could be as I didn't catch the name?!

      Thanks,
      Tina

      Comment

      Today's Birthdays

      Collapse

      Working...
      X