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Nearly all of those with HCM are on some type of meds...

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Deedee "family heart murmur" detected in early childhood, HCM diagnosed in 2000, ICD 2010 Find out more about Deedee
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  • #1

    Nearly all of those with HCM are on some type of meds...

    Oh really? I was surprised to read that. It really makes me wonder why I'm not on anything.

    In fact, I've been told I don't even have to worry about any pre-meds at the dentist.

    Of course "no meds" is barking right up my tree as I hate meds so I haven't argued the point with anyone, that's for sure.

    This statement on the forum info got my attention though, that's for sure.

    ~Deedee
    »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
    Murmur detected in childhood (3rd gen, 3 clear siblings)
    Chronic dyspnea, dizziness & palpitations (21+)
    Echocardiogram showing 3X thicknesses 2000
    Cardiac CT 2009 no significant obstruction or plaque (Yay!)
    Cardiac MRI 2010 showing septal scarring (Boo!)
    Verapamil 280mg a day (metoprolol starved extremities)
    ICD MAR 2010 - Canadian Trials St. Jude FORTIFY
    Tags: None
  • #2
    Re: Nearly all of those with HCM are on some type of meds...

    Are you obstructed?
    Yes, most are on meds to help the heart relax. You should speak to your doctor about your options.

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    • #3
      Re: Nearly all of those with HCM are on some type of meds...

      lisa

      i'm surprised you didn't jump on "no pre-medication for dentist appointments" in the post.

      Lisa had a stroke because her dentist told her she didn't need to premedicate.

      you may want to reconsider.

      S

      Comment

      • #4
        Re: Nearly all of those with HCM are on some type of meds...

        I did not 'Jump'..because I am waiting for a little more information. Those without obsturuction may not have as great a need for pre-meds- although I THINK WE ALL NEED IT BECAUSE YOU MAY BECOME obstructed with provocation!...
        So I will wait for the answer..then I will likely go into my "I have been there and you do not want to go there..." bit

        lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment

        • #5
          Re: Nearly all of those with HCM are on some type of meds...

          As far as I know, I am not obstructed. Save yourself, I got the idea already. No really - I do! I do!

          *hugs*

          Deedee
          »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
          Murmur detected in childhood (3rd gen, 3 clear siblings)
          Chronic dyspnea, dizziness & palpitations (21+)
          Echocardiogram showing 3X thicknesses 2000
          Cardiac CT 2009 no significant obstruction or plaque (Yay!)
          Cardiac MRI 2010 showing septal scarring (Boo!)
          Verapamil 280mg a day (metoprolol starved extremities)
          ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

          Comment

          • #6
            Re: Nearly all of those with HCM are on some type of meds...

            I was diagnosed couple of months ago after a flu check up. Very few symptoms but a high gradient. On the suggestion of the cardiologist I started on Toprol immediately. Few weeks after taking toprol I started getting chest pains which I had never exprienced before diagnosis. I started seeing a specialist and tried Verapamil for a couple of weeks and the chest pain continued.

            I figured that the medicines were causing the chest pain and in consultation with the specialist I went off medication. I feel much better (no constant tightness in the chest) though I still have pain once in a while. I am off medication now - have been told that medication is only for reduction in symptoms so if I feel better without the medication there is no need to take it.

            Comment

            • #7
              Re: Nearly all of those with HCM are on some type of meds...

              I felt that way too, I hate meds and honestly have a lot of issues around why they're produced, for what and whom, etc. And like you if the only reason a med is taken is to mask symptoms, I dodge it.

              But a EMT friend of mine said if I have heart pain to think about it as relieving heart pain (he said) actually helps it to relax. So I guess in this case it might do more than just mask the symptom, it might help reduce the stress the heart is under and actually help it and feeling less pain is sort of a side-effect benefit then, if you see my meaning.

              Well lucky for me my recent problems with pain have subsided, so I get to go back to dragging my heals on the issue. I figure when I get to that bridge, I'll worry about crossing it then but I just wanted to share that thought.

              Deedee
              »-(¯`·.·´¯)-> HCMA LOVES YOUR HEART <-(¯`·.·´¯)-«
              Murmur detected in childhood (3rd gen, 3 clear siblings)
              Chronic dyspnea, dizziness & palpitations (21+)
              Echocardiogram showing 3X thicknesses 2000
              Cardiac CT 2009 no significant obstruction or plaque (Yay!)
              Cardiac MRI 2010 showing septal scarring (Boo!)
              Verapamil 280mg a day (metoprolol starved extremities)
              ICD MAR 2010 - Canadian Trials St. Jude FORTIFY

              Comment

              • #8
                Re: Nearly all of those with HCM are on some type of meds...

                DeeDee, I guess it really depends on the severity of the individuals cause for the symptoms.
                Beta Blockers and Anti-arrythmias are potentially life saving meds that do more than just mask symptoms.
                Beta Blockers slow down and soften the heart beat so the heart is not over working which in the long run will cause the heart to just burn out.
                Anti-arrythmias will keep some life threating irregular rythyms in check.
                I agree that a lot of people are over medicated and in some cases they are given more meds to take care of symptoms caused by other meds they take.
                My sister is a prime example, over the years she has had so many meds added that she was like a zombie all day. She was taking dozens of pill every day.
                We had her check into a hospital where they wiened her off all the drugs and started her over on just what she needed.
                When she came out of the hospital, she told us she didn't know where the last two years went.
                That's scary.
                Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                So if you are capable of thought then you are capable of great things
                Good luck and stay well.
                Glen

                Comment

                • #9
                  Re: Nearly all of those with HCM are on some type of meds...

                  A former cardiologist of mine (he's now retired), told me that if I did not pre-medicate (...and I have NO obstruction),before dental procedures, it would be like playing Russian roulette....better safe than sorry! And as far as other meds are concerned, I take a beta blocker --- not just for irregular beats , but to make my heart relax as Glen stated...I want this fat heart to beat as long as possible!
                  \"It is not length of life, but depth of life.\"

                  Ralph Waldo Emerson

                  Comment

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