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  • #1

    coenzyme Q10

    does anyone use this? there is a report in the literature showing reduction in septal thickness and symptomatic improvement in 6 patients taking 200 mg/d. Any comments???
    David in Indianapolis
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  • #2
    Re: coenzyme Q10

    There's really not been any reliable scientific studies done on CoQ10, but you'll find some people on the board here, myself included, who swear by it. I started taking it as a means to help counteract the effects of beta blockers, and i believe i have received a great benefit from it. There are those however who have tried it with no apparent benefit.
    "Some days you're the dog... some days you're the hydrant."

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    • #3
      Re: coenzyme Q10

      I have been taking it for several months now because of a couple meds I take that deplete it.
      Over all I feel better, now I don't know if that is because of the CoQ10 or in my mind, but I believe it works so I'll continue to take it.
      Jim, hows your staph infection? Have you beat it yet?
      Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
      So if you are capable of thought then you are capable of great things
      Good luck and stay well.
      Glen

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      • #4
        Re: coenzyme Q10

        Every few weeks this comes up. Co Q10 will not decrease hypertrophy in HCM. Some people take it and claim to feel better - although there is not a clear cut reason why - others have no imporvements in symptoms.

        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: coenzyme Q10

          I wish somebody would do an honest-to-god, double-blind study on the stuff. Then we would know for sure
          "Some days you're the dog... some days you're the hydrant."

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          • #6
            Re: coenzyme Q10

            in general, the ratio of people with HCM to the amount we know about it is pretty sad. I think the NHLBI needs to pay more attention to this.
            David in Indianapolis

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            • #7
              Re: coenzyme Q10

              The NHLBI is no longer involved with HCM research - They have ended the program.

              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

              Comment

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