If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Thanks!

Collapse

About the Author

Collapse

javadanny Find out more about javadanny
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Thanks!

    Hello, this is my first post but I've been reading for several months. I wanted to say thanks to everyone that makes this board possible. It has been a great help to me over the last year. Today is my 'rebirthday'.

    To make a long story short - one year ago today I found out I had HCM the hard way. I was getting ready for work when I collapsed in the bathroom. Luckily my wife was there and she called 911 and my neighbors right away. I didn't wake up for two days and in the time I was 'out' I had had 10 more 'code blue' events in the hospital. I had an 'oncall' cardiologist that told my wife and mom to start making funeral arrangements and nurses that talked about me in the past tense.

    At some point in the wee hours of the morning I had a doctor that tweaked my medication and I started to improve. Several days later the HCM diagnosis came in and my life has been different ever since.

    It's only been in the last month that my recall memory has gotten to the point to where I can remember where my keys are at but at this point I've adjusted to the new 'normal'.

    I found this site about a month after I got out of the hospital - it took me a while to just remember what this disease I had was. This site has played a big part in my recovery and showed me that I wasn't alone out there. Actually, I think I'm pretty well off compared to what some others are going through.

    Once again, thanks for sharing. It has made a world of difference...

  • #2
    Re: Thanks!

    Welcome, I'm glad we've been able to help. Sounds like you've had a rough year and come a long way. We're all still learning and I'm sure you will be able to help others along the way also. Feel free to contact Kelly in the HCMA office and she will send a packet of info to you. I hope things continue to improve for you. Linda

    Comment


    • #3
      Re: Thanks!

      WOW...
      You are very welcome. We are very happy you are here with us.
      HAPPY RE-BIRTHDAY!
      Your story is amazing and one that I am sure will be of interest to others.
      Thank you for taking the time to tell it to us. I hope to hear from you again.

      Sincerely,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: Thanks!

        WOW! What an awesome story! I'm so glad that you were able to get immediate help. I can only say WOW.

        I'm glad that we've been able to show you that you aren't alone with your HCM. There are lots of people who know how you feel about the diagnosis. I sure hope that this coming year will be full of fewer surprises, or at least unpleasant surprises, than last year.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment


        • #5
          Re: Thanks!

          Geez that was incredible, sounds like something you would see on ER.
          Glad your still with us
          Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
          So if you are capable of thought then you are capable of great things
          Good luck and stay well.
          Glen

          Comment

          Today's Birthdays

          Collapse

          Working...
          X