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how safe is it being on Lasix having hcm

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  • how safe is it being on Lasix having hcm

    Lasix is another medication I don't see many posts of. Is it ok to be taking this. My husband is a new HCM victim and we're scared and we r in the learning stage of this disease. My husband is also on blood pressure medicine (lisinopril) Is this okay or not? Thank you
    Debbie

  • #2
    Re: how safe is it being on Lasix having hcm

    Dear Debbie,

    Some people need Lasix. Most with HCM don't take it. Is he in congestive heart failure? Lasix is to reduce water, but unless he's in CHF, most people could actually handle a little more water in their blood streams to increase blood volume. Also, there are some blood pressure meds that are better for people with HCM than others. I don't know the one your husband takes, but maybe others will read this and respond on that. It sounds to me like you would benefit from seeing an HCM specialist. Please call Lisa at 973-983-7429 and she can point you toward someone who should be able to help you get to the bottom of your questions.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Re: how safe is it being on Lasix having hcm

      Welcome to the board,
      Lasix is used in many with HCM but great care must be used so that hydration is maintained while keeping off extra fluid. Yes it is a fine line and one that must be evaluated nearly daily.

      Please call the office if you have any questions as you are "new" to the HCM world I am sure you have a few on your mind.

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: how safe is it being on Lasix having hcm

        Debbie

        I also take lasix, I have mild CHF and it does help with fluid retention, but just like Lisa and Reenie said you have to be careful and watch for signs of dehydration, i only take mine when needed, i have to do the old finger test on my leg, i press in at my shin bone to see if the indent stays there then i know i'm retaining fluid, my dads heart doctor taught me that years ago, when i take my lasix after a couple of days i don't feel quite as slugish, in other words i have a little more energy, but talk with your doctor, Just like Lisa says everyone is different and what works for me may not work for others, and call Lisa, it is important to see a specialist for this disease, cardio doctors, while good doctors this disease needs a doctor that deals with it on a regular bases
        Take Care
        Shirley
        Diagnosed 2003
        Myectomy 2-23-2004
        Husband: Ken
        Son: John diagnosed 2004
        Daughter: Janet (free of HCM)

        Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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