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How Many Doctor's Have You Seen?

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Cappy HCM and myocardial bridge patient, also have primary progressive MS Find out more about Cappy
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  • How Many Doctor's Have You Seen?

    Since I first started experiencing symptoms this past December:
    • 11 cardiologist
    • 1 cardiac surgeon
    • 2 HCM specialists
    • 1 pulmonologist
    • At 20 least Internal Medicine Residents
    • Had 7 echocardiograms
    • God knows how many EKG's and Chest X-Rays
    • 4 stress test
    • 1 nuclear test
    • 1 Cardiac Catheterization
    • 1 Breathing Test
    • Been admitted to the hospital 5 times
    • Been to the ER 12 times
    • Been stuck with needles, IV's etc, about 30 times
    • Taken to hospital 4 times by ambulance, twice by co-workers
    • Passed out 4 times
    • On my third cardiac medication

  • #2
    Re: How Many Doctor's Have You Seen?

    Wow!

    That is very impressive for such a short period of time.

    I was diagnosed at 13, and if I had to count ALL the doctors I've seen while in the teaching hospital nearby, well, then I wouldn't finish this post for a week. So I'll stick to doctors whose name I can almost remember.

    Cardiologists and Electrophysiologists: 18 with an appointment to see a new one in September.

    How many of those call themselves an HCM specialist? 2 or 3.

    I have about five other specialists I see for things not entirely related to HCM.

    l,
    S

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    • #3
      Re: How Many Doctor's Have You Seen?

      Cappy & Sarah,

      Double-wow! In the 4+ years since my HOCM diagnosis I've seen two physicians who specialize in cardiology. One who is not a specialist in HCM and one who has an expertise in HCM diagnostics & treatment.

      I would be confused and very upset if your situation had happened to me, Cappy! I sure hope you've got a lead cardiologist who you trust now and you're getting coordinated care which doesn't involve unnecessary duplication of tests.

      I am on my fourth or fifth med.

      Pat

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      • #4
        Re: How Many Doctor's Have You Seen?

        Gee, I don't feel so bad. I've been to 1 HCM specialist, 3 cardiologists and 1 electrophisiologist. And judging from my last visit with the cardiologist, I might be seeking out another one. Seems like evry time you go to see someone new, a new piece of the puzzle crops up. Guess I'll be seeking out the next one soon.

        Stay well and God Bless
        Diagnosed in 1980, ICD Implant 2003, 2nd ICD in 2010.
        Gene Positive, As is my mom as well as one of my 2 sons ( 50% Rule ) and my Grandson.
        Non Obstructive. Atenolol

        Comment


        • #5
          Re: How Many Doctor's Have You Seen?

          Re: meds. I've taken four or five different beta-blockers, two calcium channel blockers, one ace-inhibitor, two potassium-channel blockers, and digitalis. The only drug I've not tried is amiodarone, which I refuse to take b/c of the side effects.

          S

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          • #6
            Re: How Many Doctor's Have You Seen?

            Is that all?

            WOW... you have had a **** of a few months!

            How are you feeling now??
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: How Many Doctor's Have You Seen?

              Originally posted by Lisa Salberg
              Is that all?

              WOW... you have had a **** of a few months!

              How are you feeling now??
              Lisa
              Its been a long last several months.

              I am feeling pretty sucky, but making it through ok

              Comment


              • #8
                Re: How Many Doctor's Have You Seen?

                again I say..WOW...

                Have you had any improvement since you have seen the specialist?

                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #9
                  Re: How Many Doctor's Have You Seen?

                  Originally posted by Lisa Salberg
                  again I say..WOW...

                  Have you had any improvement since you have seen the specialist?

                  Lisa
                  Nope.

                  Comment

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