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Looking for information on disopyramide

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  • Looking for information on disopyramide

    I have been on Atenolol for some time and am currently at 300 mg. It isn't doing the trick so my HCM specialist is suggesting to try disopyramide, in a couple weeks. What I would like to know is from people who have first hand knowledge of this drug, what are the side effects, and how did it work for you. What precautions come with it. I have about had it with medications. I don't want to feel 10% better, I want to feel more like 90% better.

    I appreciate your input.

    Doug
    NEMC's (Boston) First Myectomy 7-22-2003

  • #2
    Re: Looking for information on disopyramide

    Hi,

    I was on disopyramide for ten years with no major side effect except I think I had to go the restroom more often and sometimes a little dry mouth.

    It is sometimes now started while you are in the hospital as (very rarely) it can cause arrhthymias instead of fix them.

    You can visit intellihealth.com's drug resource guide for the full prescribing info. Keep in mind that all heart medications have scary side effects, but they very rarely happen.

    It is certainly worth a shot and I don't have anything bad to say about the medication at all. It stopped working for me after ten years only b/c I screwed up and some other things happened.

    keep us posted,

    S

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    • #3
      Re: Looking for information on disopyramide

      Hi doug
      I just started taking 250 mg of disopyramide and metoprolol 50 mg yesterday. I've been taking monocar for about 2 years and according to my tests yesterday it's not doing the trick. I can't tell you how it's working because it's too soon but I will certainly let you know in about a week or two.
      Tammy

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      • #4
        Re: Looking for information on disopyramide

        I have not taken the drug myself, but my sister did. She has some of the same issues that Sarah mentioned. Good luck - I hope it does the trick for you.

        Be well,
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #5
          Re: Looking for information on disopyramide

          I am also interested how you all fare on this drug, as my doc has suggested it to me also if higher doses of beta blockers don't do it for me. Right now I am on 100 mg. of atenolol daily and it isn't doing the trick. I am having an echo in a couple of weeks and I guess we will see where to go from there.
          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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          • #6
            Re: Looking for information on disopyramide

            Hi,

            Actually my post was back in May and since then they decided not to try the drug and I am having the myectomy next week. Thank you.

            Doug
            NEMC's (Boston) First Myectomy 7-22-2003

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            • #7
              Re: Looking for information on disopyramide

              Hi Doug
              I think it's been over a week now or maybe a week since I started the meds and I notice a significant difference. I can actually sleep at night without the feeling of a weight being on my chest. I have a bit of a dry mouth and I dream alot more (or remember them). For me I think so far that's it's good for my HMC. Goodluck, let me know what you decide?
              Tammy

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              • #8
                Re: Looking for information on disopyramide

                Doug, all the best your myectomy next week!!

                Disopyramide: 4th day now on it, more SOB, more headach's and I'm waking up during the night.
                Seems like I'm a little bit less tired though, might also be that I'm finnaly catching up on some sleep.....

                Time will tell I guess..

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