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TammyC I have 3 beautiful children who mean the absolute world to me. They are my life...... Find out more about TammyC
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  • Monocar

    I have not seen anyone using the medication monocar that I am taking. Am I the only one?
    Tammy

  • #2
    Monocor, (Bisoprolol Fumerate), would tend to lessen, for instance, a midventricular obstruction. Monocor, while it may be the most selective beta-blocker on the market, (and therefor of potential benefit to asthmatics) still has the potential to worsen asthma in some people.

    Comment


    • #3
      What country do you live in?
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        two mints in one...

        Hi,

        Monocor is called Zebeta in the US. It seems to be a tad newer and more expensive than Tenormin (atenolol), according to what I read.

        I haven't seen anyone mention Zebeta here, but if it costs more, then it isn't going to get a big play with HMOs.

        S

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        • #5
          My doctor prescribed zebeta for me because I have asthma. I still couldn't take it. It caused terrible respiratory distress for me as all the beta blockers. I feel like I am allergic to them.

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          • #6
            Re: Monocar

            Hi! I hope I am replying in the right place. This is the first time I posted anything and was so surprised to see that people actually answered me. Thank you! I am from Toronto, Ontario and started taking atenelol about 4 years ago. I found that it made me tired so my doctor put me on monocar which I've been taking for 2 years now. As I've been reading the posts, I've been shocked at how many people have HCMA. I found out that I had it 4 years ago at age 28. I had my children checked immediately and thank god are clear. I was adopted and found my birth mother at 25. Nobody in the family has HCMA but there are several heart conditions. I was supposed to go for tests on April 11 but as I'm sure you've heard, there's been a big outbreak of sars so my appointment needs to be re-scheduled. I was under the impression that HCMA was not really anything serious but as I've been reading I'm becomming more and more concerned. Thanks to everyone I'm really getting alot more knowledge!
            Tammy

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            • #7
              Re: Monocar

              Hi Tammy. Well, to begin with, HCM can be serious. I am not trying to alarm you, but you should know that there can be serious symptoms resulting from having HCM. The muscle is too thick, therefore not as elastic as it could otherwise be. Sometimes there is a problem with the muscle being thick in a spot that obstructs the blood flow out of the left ventricle. And sometimes the cell structure that causes HCM can cause electrical problems too. It sounds like you need an expert. I'm sure Lisa will be happy to talk to you if you give her a call. She can point you in the right direction once the SARS scare is over.

              As far as your children go, they should be screened every couple of years until about 10-12, then yearly until they are early twenties. HCM often doesn't present itself until puberty. If they screen clear at early twenties, every 5 years screening would be sufficient. It's unlikely that they would show signs of HCM after then, but not impossible.

              I am glad you found us and I hope that you learn a lot here. We are here for information as well as for support, so feel free to post any questions you have.

              Reenie
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

              Comment


              • #8
                Re: Monocar

                Dear Tammy,

                While there are a lot of people with really bad HCM, please understand that the vast majority of HCMers live a full life-span. However, to make it that far, you need to be getting the proper care. There are some great Canadian specialists that we can hook you up with by calling the office.

                Regular screening of the kids is imperative. However, you don't want to scare them into thinking something is wrong.

                Every post is answered here, even if we just say "hey, I know how you feel."

                Take care,

                S

                Comment


                • #9
                  Re: Monocar

                  Tammy,
                  Monocar is more commonly used in Canada and the UK, that is why you do not see much mentioned here on the website (as it is run by a bunch of Yanks, with a hometown in NJ )
                  It is a beta blocker and is commonly compaired to atenalol. RE your asthma, have you ever had a pulmonary function test? Many people with HCM have been told they also have asthma, however on testing their lungs appear normal, this shows that the S/B is due to the HCM not asthma.
                  Have you seen Dr. Wigle in Toronto?

                  Best wishes,
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

                  Comment


                  • #10
                    Re: Monocar

                    Dr. Wigle? Have you heard good things about this doctor? Can I find a number on the internet? Thank you for the info.
                    Tammy

                    Comment


                    • #11
                      Re: Monocar

                      Tammy,

                      We love Dr. Wigle, but we don't post contact info on the board. Please call the office at 973-983-7429 or e-mail Lisa for more info.

                      S

                      Comment


                      • #12
                        Re: Monocar

                        Tammy, I have been seeing Dr. Wigle at Torontp General Hosp. for 30 years now and he is considered one of the top specialist for HCM.
                        Toronto General has a very good HCM unit.
                        I can give you his office #, but you cannot just call him and get an appointment, you will have to get a referral from your GP or cardiologiost you are currently seeing. Once they have contacted Dr. Wigle, his office will call you with an appointment date at which you will have a few tests and then a consultation with Dr. Wigle afterwards.
                        If you want his office #, let me know and I'll send it to you via separate e-mail or you could call Lisa, I'm sure she has it.
                        Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                        So if you are capable of thought then you are capable of great things
                        Good luck and stay well.
                        Glen

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