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denjen5 Find out more about denjen5
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  • JillC
    replied
    Re: Lisinopril

    You might want to have a good scale and do daily weights for a while.... Especially if you transition off lasix. My cardiologist let me try switching from lasix to HCTZ and I found that I kept gaining water weight and had to switch back. Lasix is a much stronger diuretic than HCTZ..... My HCM cardiologist at Mayo says they are not sure why some HCM patients tend to gain water weight and some don't ....... I weigh each morning and my cardiologist has me adjust my lasix according to my weight. I take 20mg per day and increase to 40 mg per day when my weight goes up more than 2 pounds. I only mention this because if the fluid balance is not managed it can contribute to high BP. ....just a subject for conversation with your team.

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  • rpttrsn
    replied
    Re: Lisinopril

    Originally posted by JillC View Post
    Depending on your age, there are new guidelines for BP target in people with hypertension. Discuss with your Cardiologist what your target range should be...The dangers of syncope and falls with low BP can be as dangerous or more dangerous than the risks of high BP. I run 130/80...Which used to be considered " a little high" but now it is in the acceptable range.
    As far as HCTZ it is a diuretic, if you are on lasix already they may not put you on both. Calcium channel blockers and beta blockers work well in HCM to both relax the heart and along with that lower the blood pressure....
    Here's hoping that as your heart remodels after your myectomy you won't need to add new drugs. Best of Luck in your recovery.
    Thanks Jill.
    The NP said if I go to HCTZ I would have to go off the Lasix.
    My BP has been better being off Lisinopril. Am still recording a few times a day for the NP. Will send results to them soon.
    Ron

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  • JillC
    replied
    Re: Lisinopril

    Depending on your age, there are new guidelines for BP target in people with hypertension. Discuss with your Cardiologist what your target range should be...The dangers of syncope and falls with low BP can be as dangerous or more dangerous than the risks of high BP. I run 130/80...Which used to be considered " a little high" but now it is in the acceptable range.
    As far as HCTZ it is a diuretic, if you are on lasix already they may not put you on both. Calcium channel blockers and beta blockers work well in HCM to both relax the heart and along with that lower the blood pressure....
    Here's hoping that as your heart remodels after your myectomy you won't need to add new drugs. Best of Luck in your recovery.

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  • rpttrsn
    replied
    Re: Lisinopril

    I had my Myectomy on January 15, 2015 in Boston.
    My cardiologist just put me on Lisinopril 10 mg. he thought it was strange that my blood pressure has gone up. He felt that it should have gone down if anything after the surgery. I was taking hydrochlorothiazide 12.5 mg once a day. After surgury they took me off all the meds except for Lipitor, aspirin, Lasix (temp) for water weight.
    Taking my BP a few times daily and giving them the results, it was dropped to 5mg daily. After a few days on 5mg I was fine until I did anything exerting. Lightly raking in my yard and bending over to pick up the pine needles I knew I was going to pass out so I went to the ground before it happened. Took off my glasses and one shoe when sitting there. Have no idea why. After about 5 min. I went in the house and took my BP. 75/42 with a pulse of 100. It took 3 hours for my BP a to get in a normal range. The day before my pressure went down after a 1/4 mile walk. Around 100/68. Again at rest the BP was fine taking 5 mg of Lisinopril. My Nurse Practioner told me to stop taking it and record my BP for the next few days. It's a bit high at times but I don't want to take Lisinopril if possible. Would like to go back to 12.5 mg hydrochlorothiazide and see how that works. Never felt like I did that day last week. Oh yea! Couldn't remember where I put my glasses. Found them in the yard about 45min later.
    Ron

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  • Tim West
    replied
    Re: Lisinopril

    I was taken off ace inhibitors because of hcm.
    Also golfers shouldn't take a drug called ace inhibitor.
    I am taking an arb and it's working good so far

    Sent from my SGH-I337M

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  • Redteamer
    replied
    Re: Lisinopril

    Glad we are all in agreement on Lisinipril

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  • Jordan Z.
    replied
    Re: Lisinopril

    I am diabetic and Stage IV CKD....and my kidneys HATE lisinopril.......on a minimal dose for a week sent my creatinine >5.........no thanks.

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  • JillC
    replied
    Re: Lisinopril

    Hi Angus....
    I think that each case needs to be looked at individually....I am a diabetic and research has shown that lisinopril and other ace inhibitors have a preservative effect on kidney function in the diabetic....so my PCP and cardiologist had a discussion and I ended up on a tiny dose of lisinopril, then Losartin ( technically an ARB but similar in function to ACE inhibitor) for my kidneys. Now that I have had a successful myectomy....my cardiologist both Local and at Mayo ..... Seem to be fine with me increasing the Losartin to control blood pressure while they decrease my calcium channel blocker.
    Also, Years ago they did studies in HCM mice and found lisinopril decreased cardiac muscle fibrosis.... But If I remember right, this has not panned out in human studies.
    Sooooo it seems this is a drug with both a negative and positive potential. Maybe since you came into CCF on lisinopril and were having a myectomy they just left you on it because most of the problems with lisinopril are related to obstructive HCM ....and now you are not obstructed.
    I have not done extensive research on this, The 2011 guidelines recommend avoiding it. But I'm also a great fan of "If it ain't broke, don't fix it" and you seem to be doing exceedingly well! Happy Easter

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  • angusjcampbell
    replied
    Re: Lisinopril

    Huh. I've Been on Lisonopril for years for BP, along with atenolol. It was on my list of meds when at Cleveland for my myectomy. No one raised an eyebrow.

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  • JillC
    replied
    Re: Lisinopril

    Lisinipril is in a class of drugs called ACE inhibitors. This class of drugs is not generally used in HCM patients. It's mechanism for lowering BP can actually cause an increase in obstruction, increase in outflow tract gradient and increase in symptoms. There are many other drugs not in this class that could be used. Remind your local doctor that the HCM specialist took you off the Lisinipril because of your HCM. Call your HCM specialist tell him the problem he can prescribe or recommend a different medication for your BP and communicate with our local doctor.
    Also, you need to write down a list of your medications and what each one is for and keep it with you at all times. If you can't research this yourself....maybe a family member can help or the nurse at your Doctor's office.
    It's important!
    Last edited by JillC; 04-02-2015, 10:34 AM.

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  • gfox42
    replied
    Re: Lisinopril

    Hi Denjen,
    Since you are new to the board, please introduce yourself (when you have a few minutes) in the "Hello! My name is . . ." forum.

    Lisinopril (and the other drugs like it, all called ACE inhibitors because they inhibit angiotensin-converting enzyme) are very effective for hypertension, but they can cause serious problems in people with HCM. They're generally considered contra-indicated for people with HCM, because they can make your pressure gradient worse. There are other drugs for hypertension that we can take. It often takes a while to find the right combination of drugs for a person.

    Gordon

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  • denjen5
    started a topic Lisinopril

    Lisinopril

    Is anyone taking lisinopril for high blood pressure? I was recently diagnosed with HOCM in February, my cardiologist at mayo took me off of lisinopril. My bp is still high, so I called my local Cardiologist yesterday and he told me to double the dose of lisinopril. but i had forgotten I was off of it(can't keep all my meds straight)until i got home. Im calling him back today when he gets to his office


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