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  • stopping verapamil

    I was reading on a previous post that beta blockers should not be stopped cold turkey. Does this include calcium channel beta blockers? My husband has been on verapamil for 10 months and his dr. called on Monday to say thay he needs to stop taking it right away. He is also on atenelol. Should we be concerned? Thanks for any information.

  • #2
    Why has the Dr advised him to stop the meds and what were his directions?
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      i don't think so....

      Hi,

      I haven't experienced or heard of any problem with stopping verapamil suddenly. I stopped taking it and boy, did I feel better!!!

      keep us posted,

      S

      Comment


      • #4
        Thanks for the reply. His cardiologist is referring him to a specialist in Toronto since he seems to be feeling worse. When he called the new dr. to discuss my husband, he told him that the verapamil is contraindicated in his case since he has an obstruction. We were told to stop right away.
        I'm hoping he may start to feel better. Thanks again.

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        • #5
          I also have HOCM and see a doctor in Toronto, Dr. Wigle at Toronto General to be specific, and the first thing he did when he saw me last Sept. was to take me off Verapamil. He said it was probably making me feel worse. He put me on Atenonol, which helped some. I didn't have to wean myself off the verapamil.

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          • #6
            That's who my husband is being referred to! How are you feeling now? His appointment is in April, we are very anxious. He just had his atenelol doubled so its hard to say what was making him feel so lousy. Thanks again.

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            • #7
              Unfortunately I can't tolerate more than 25 mg of Atenenol (or any of the "nol's" for that matter). I going back to have a heart cath to decide if I am a candidate for myectomy or achohol ablation. I was non-symptomatic for the 5 years I knew had HOCM. Then last year when I got CHF it was downhill from there. I hoping the when I get my heart is working better the CHF will be better controlled. Does anyone know the answer to that question? Did your CHF improve after surgery?

              Dr.Wigle is one of the best in the world. He is very good and very thorough. Your husband is in very good hands.

              Take care,
              Robbyn

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              • #8
                Dr. Wigle has a great amount of expereince and you can feel good knowing your in good hands.
                Obstruction and Verapimil can be an issue...although for some it seems fine?? just one more odd thing about managing HCM???
                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #9
                  I'm not sure I understand the issues with Verapamil and having obstruction. I'm curious, of course, because Dylan has just recently begun taking Verapamil along with his Propranolol and he has obstruction. In his case, he's improved IMMENSELY since adding the Verapamil - he's pink and chubby these days. Not pale and sometime blue like before. It's been a wonderful week seeing him improve He's had no complaints and the improvement is very obvious.

                  So what are the possible issues with it?

                  Dee
                  Dee, Mom to Dylan
                  (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

                  Comment


                  • #10
                    meds

                    Dear Dee,

                    HCM is SO individual, you have to go with what works for you (or your son) and there are a chunk of people who do take both.

                    If you see improvement, then I wouldn't be worried about it.

                    I think some concern is with the heart contractions and blood pressure/volume. However, peds is a whole other ball of wax, too.

                    S

                    Comment


                    • #11
                      I was on Inderal/Verapamil for many years and stopped Verapamil cold turkey following myectomy. I was weaned off of the Inderal over the course of a month and switched to Atenolol.

                      Feeling much better now!
                      HOCM, Septal Myectomy 10/02 (Mayo Clinic), Medtronic ICD 10/07, TIA 10/07

                      Comment


                      • #12
                        Hi Gabbs??
                        I am also seeing Dr. Wigle for my annual April 4th, when's your husband going?
                        He's been my HCM doc for over 30 years now.
                        Your hubby's in good hands.
                        Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                        So if you are capable of thought then you are capable of great things
                        Good luck and stay well.
                        Glen

                        Comment


                        • #13
                          Hi Glen,
                          My husband is going to Toronto on April 11. How long have you been with Dr. Wigle? His appointment cannot come soon enough. He was feeling lousy before stopping the verapamil, but since stopping it, he is much worse. Hopefully it is just his body adjusting to the change.
                          Is the hospital near the downtown area? We live about 4.5 hours away and will probably be staying over. Hopefully we can even take in a show!

                          Comment


                          • #14
                            Over 30 years now, I was diagnosed at age 21.
                            I assume he has a set of tests to go to, ECG and echocardoigram for sure.
                            After those tests he will meet with Dr. Wigle to discuss the results and then
                            he will suggest a coarse of action re more tests or medication changes etc.
                            If you have any questions now and think of any between now and then, write them down so you will not forget them when the consultation takes place.
                            I see you asked a question about obstruction on another posting, this is the perfect type of question to ask Dr. Wigle.
                            Yes, the hospital is right down town and not too far from The Lion King or Momma Mia.
                            You should try and book either ASAP.
                            I'm actually going to Momma Mia April 12th to the afternoon matinee.
                            Good Luck and post how you make out.
                            Every great thing that has ever happened since the beginning of time has started as a single thought in someones mind.
                            So if you are capable of thought then you are capable of great things
                            Good luck and stay well.
                            Glen

                            Comment


                            • #15
                              Thanks for the info. Yes he is scheduled for several test, we are expecting to be there most of the morning. They are obviously doing something right with you. How do you feel most of the time?

                              Comment

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