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Inderal LA

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annamc Find out more about annamc
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  • #16
    echos, not symptoms

    L,

    ok, ok, ok, Inderal is ok. I hear ya.

    However, how often is someone the first in their family to have HCM? Just curious is there are stats on that.

    ANNA--- It is an echo that determines if you have HCM or not, so being without symptoms is not enough. Your brother should get an echo every few years as a precaution. Your parents should have ehcos, too, if they haven't had them in 5 years or so.

    take care,

    S

    Comment


    • #17
      first with HCM

      I'm also wondering about the statistics about having it just all of a sudden pop-up in a family. We haven't found ANYONE in the family tree that has HCM other than my son Dylan. The closest *maybe* is my maternal great, great grand mother had a few blue babies and Dylan's paternal 2nd cousin had Tetralogy of Falot. Ok, and I still haven't had my echo yet and I'm running for the door now before Lisa yells at me again.

      Dee
      Dee, Mom to Dylan
      (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

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      • #18
        DEE what are you waiting for???
        dont get me started....
        shall I come and drive you myself to your echo...
        WELL???????
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

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        • #19
          My children are the only family members with HCM in both our families, BUT they are also diagnosed with Noonans Syndrome which has heart disease associated with it 50% of the time. The genetics specialist we consulted thinks that's why my kids have HCM. Of course, there is no genetic blood test to confirm either of these conditions. Most of my family has been tested and cleared of HCM.

          Interesting, huh?!
          Michelle - mom to Krista and Tyler both HCM
          Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
          Tyler surgery: 1/98 myectomy

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          • #20
            Re: Inderal LA

            Inderal LA may well be one of the first beta blockers, but it has worked efficiently for me these past years. I am assuming this is good for me. I've looked up the other beta blockers and issues concern me. I'm not going to just switch from this drug to another one b/c it is newer. The side effects were just the same and I run the risk of complications from a switch. Not wanting to risk it at this point. Just got rid of the SOB by my doctors instructions to take 80mg of Inderal LA twice a day according to a New England Journal Study.


            All is well at the moment, Anna

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            • #21
              Re: Inderal LA

              If it ain't broke, don't fix it!

              S

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              • #22
                Re: Inderal LA

                DEE, Lisa will do it She flew all the way to boston to meet me to make sure I got to a specialist. so don't think she won't because she will!

                Mary S.

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                • #23
                  Re: Inderal LA

                  Sarah:

                  YEAH, if it ain't broke, don't fix it!


                  Toogoofy317:

                  LISA did that WOW, she is a wonderful person.


                  - Anna

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                  • #24
                    Re: Inderal LA

                    Why are there so many different beta blockers if they all seem to have the same side effects?

                    Since it is said all people are different, does that mean that if I switched from Inderal LA to Toprol XL, I may feel an improvement or get new side effects?

                    If someone has an ICD, do they still need to take medications?

                    Does anyone know if the Toprol XL, which I think is supposed to last 24 hours, really last 24 hours or start wearing off before waking up?

                    Okay, that's all my ?'s for now. I'll check back tomorrow.

                    Anna

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                    • #25
                      Re: Inderal LA

                      Why are there so many different beta blockers if they all seem to have the same side effects? Because they are in the same class of drugs.

                      Since it is said all people are different, does that mean that if I switched from Inderal LA to Toprol XL, I may feel an improvement or get new side effects? Yes, exactly. Your body chemistry is unique, so the way you react to a particular drug is unique to you.

                      If someone has an ICD, do they still need to take medications? In general, yes. Many times the meds are to soften and regulate the heart beat. The ICD does nothing but monitor you.

                      Does anyone know if the Toprol XL, which I think is supposed to last 24 hours, really last 24 hours or start wearing off before waking up? I have no experience with this drug, but with many beta blockers your body can tell when it's time for the next dose.

                      I hope this helps you.

                      Reenie
                      Reenie

                      ****************
                      Husband has HCM.
                      3 kids - ages 23, 21, & 19. All presently clear of HCM.

                      Comment


                      • #26
                        Re: Inderal LA

                        Reenie:

                        Hi! Thanks for the reply. I guess I couldn't understand how the same category of drugs could affect you differently if they were all beta blockers. If that is the case, I may, if doctor approves switch to a new long acting drug. However, at this time, I have no need to do this as I have no SOB as mentioned above on this thread. Though, I do seem to have stomach pains a lot and I do eat something prior to taking the Inderal LA and it usually helps.

                        Hm, so let me see if I get this, an ICD is just an 'insurance policy' that in case your heart is going to beat dangerously that it shocks it back. Did I state that right? I don't have an ICD, but just wondered.

                        You said your body can tell when its time for the next dose. Well, mine doesn't tell me. I don't know why that is though. I'm lucky though b/c the doctor I had prior had me on only 60mg long acting beta blocker and it wasn't enough. I only took it once a day and it had worn off before morning, which was dangerous. I could tell then though that I wasn't getting enough medicine to stabilize my condition and make me feel better.


                        I'm sure glad I have such a support system on here and somewhere I can come where people understand what I have. I needed this a long time ago.

                        Anna

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                        • #27
                          Re: Inderal LA

                          Originally posted by annamc
                          Hm, so let me see if I get this, an ICD is just an 'insurance policy' that in case your heart is going to beat dangerously that it shocks it back. Did I state that right? I don't have an ICD, but just wondered.

                          You said your body can tell when its time for the next dose. Well, mine doesn't tell me. I don't know why that is though. I'm lucky though b/c the doctor I had prior had me on only 60mg long acting beta blocker and it wasn't enough. I only took it once a day and it had worn off before morning, which was dangerous. I could tell then though that I wasn't getting enough medicine to stabilize my condition and make me feel better.

                          Anna
                          Yep, the ICD is your insurance policy. You've got that right. Not everybody can tell when the next dose is due, but a lot of people can. Just keep working with your doctors. Take care.

                          Reenie
                          Reenie

                          ****************
                          Husband has HCM.
                          3 kids - ages 23, 21, & 19. All presently clear of HCM.

                          Comment


                          • #28
                            Re: Inderal LA

                            I understand now. All beta blockers are the same, but work differently on each individual b/c of the person's body chemistry.

                            Thanks again Reenie!

                            Comment


                            • #29
                              Re: Inderal LA

                              All beta blockers are the same in that erythromycin and clarithomycin are the same and doxycyclene and tetracyclene are the same. They are close cousins. They are formulated a little differently, but are the same. Understand? And you're quite welcome.

                              Reenie
                              Reenie

                              ****************
                              Husband has HCM.
                              3 kids - ages 23, 21, & 19. All presently clear of HCM.

                              Comment


                              • #30
                                Re: Inderal LA

                                I recommend reading this site: http://www.heartcenteronline.com/myh....cfm?ARTID=331

                                for a very good explanation of why beta-blockers are not identical drugs and what they do and why.

                                S

                                Comment

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