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Toprol-XL (metoprolol)

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mtlieb Find out more about mtlieb
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  • #16
    Jim, I agree with the above posts urging you to talk to your doctor about the side effects - esp the irreg beats. Your post helps to remind that people react differently to meds. There is no one magic potion for everyone. Linda

    Comment


    • #17
      Hi All,

      I spoke to my specialist and he thinks it is too soon to talk about switching to another beta-blocker. I'll be going to 200mg on the Toprol this coming week since my heartrate isn't coming down very fast. As far as the additional heart symptoms i've been having, he says that the medication should not be causing these. Maybe they're just all in my head

      We'll see what happens. I just want to get through the drug experimentation phase of this as quickly as possible. I'm looking for work right now and i couldn't even imagine having to show up for a new job tomorrow morning feeling like i do. Yikes!

      Jim
      "Some days you're the dog... some days you're the hydrant."

      Comment


      • #18
        drugs

        Dear Jim,

        I don't think your specialist is suggesting that what you are experiencing is in your head. (I've met your doctor a few times and I can't imagine that he thinks that --my two cents).

        However, it is true that you need to give the drugs a fair shot. Also understand that even the strongest medication and even surgery is never going to make every symptom and every palpitation go away. There will almost always be a chest pain here and some tachy runs here and there. As long as the meds are keeping your rate down and your gradient down and the side effects aren't too taxing, that may be the most you can hope for.

        If you are having more symptoms on the medication than before you started it or if it makes you feel worse after a few weeks, then it is time to talk about switching. If the beta-blocker is making you super tired, try taking it at night before bed. It can be hard to tell HCM tired from beta-blocker tired.

        take care,

        S

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        • #19
          This past year I have been on a ton of medication. The trial and error part is the worst. I started out on Toporol and after a couple of weeks it dropped my bp dramaticaly and I could not function as a human. There was at least 7 more drugs I tried. The second drug they gave me was verapamil at the time it did not help at all so we went on and on. The Cardaziem worked great for a while but I seem to get used to medications after about thirty days so within three months I was at max dosage and was not getting much relief. So they went back to verapamil and doubled the dosage from the first time. It worked for awhile and then it had to be doubled again my bp just would not hold out (80/50). So they started going on the not so conventional approach. In addition to the verapamil I was started on a long acting nitrate Isordil. The headaches were awful but they soon went away. With my last episode and a little CHF that too was doubled and Lasix was added. I still am not feeling good but I'm sure more tweaking of the medication is in order.

          I'm not trying to depress anyone but sometimes the tweaking of the medication takes awhile. It feels like a rollercoaster ride and it does get disheartening to be told that a medication that did work so well doesn't anymore . Just my two cents worth!

          Oh yeah, remember we are all different and I hope Jim you hit the jackpot the first time and find the right medication. Also as a side note thanks so much for your help with my inquires on assistance. I have a lot of numbers to call tomorrow. Hopefully something will come of it!

          Mary S.

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          • #20
            Wish me luck, I'm to start Toporol XL. I've put it off over a week because last week I couldn't afford to be tired. I'm hoping that I don't notice any difference energy wise once I start the medicine. The doctor did tell me that it would take a couple/few weeks to get my body adjusted to it.

            Good Luck to the rest of you finding what medication(s) work best for you.
            Amy

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            • #21
              Re: Toprol-XL (metoprolol)

              Hi Amy,

              I'm sure you'll do fine on it. From what i have researched Toprol-XL is a great drug and lots of people do very well on it. I myself have had a few problems but that shouldn't mean anything to you since i am usually the exception to every rule anyway. LOL. Besides, even if it doesn't go as well as you and your doctor had planned, don't worry. There are so many drugs available for this, i think you'd have to be pretty lucky to get the right one and the correct dosage right from the start. My doc started me out at 50mg and is upping it 50mg more every two weeks until we reach a level that controls my HCM symptoms with the least amount of side-effects. That's standard protocol, and i'm sure yours will do something similar.


              If you're just starting out on it make sure you take it with food, even if just a few crackers or a pop tart or something. I made the mistake of taking my first pills on an empty stomach and the little buggers didn't stay put for very long

              Good luck,

              Jim
              "Some days you're the dog... some days you're the hydrant."

              Comment


              • #22
                Re: Toprol-XL (metoprolol)

                P.S.

                Amy, don't read this one. LOL.

                ...even the strongest medication and even surgery is never going to make every symptom and every palpitation go away. There will almost always be a chest pain here and some tachy runs here and there. As long as the meds are keeping your rate down and your gradient down and the side effects aren't too taxing, that may be the most you can hope for...
                Sarah, in regard to your post... I've been on the Toprol-XL for almost two months now and if you re-read my previous posts i think you will find that my heartrate is not coming down, my HCM symptoms are actually getting a bit worse, and with each dosage increase the side-effects are getting quite taxing in fact.

                So.... given that, at what point do i just say 'enough is enough' and tell my doctor i'm not going to take this med any more?

                Jim
                "Some days you're the dog... some days you're the hydrant."

                Comment


                • #23
                  Re: Toprol-XL (metoprolol)

                  Hi Jim,

                  I did Metoprolol too. Hated it. I had nasty side effects some of which I can only say I won't even talk about. My doc switched me to Atenolol and has done the exact same thing...50 mg. increase every 2 weeks. I will be to 250 next week. The thing is, I don't have near the side effects with this one, actually almost non-existant, but I am also getting no relief of my high blood pressure or chest pains etc. It is almost like I am taking nothing at all. I would say if the side effects are that bad you call the shots with the doc. He isn't taking them, you are. I am very fortunate to have a doctor who listens very carefully to what I say, they aren't all that way.

                  My 2 bits worth.
                  Doug
                  NEMC's (Boston) First Myectomy 7-22-2003

                  Comment


                  • #24
                    Atenolol

                    Hey Doug,

                    Thanks for your post! I'm really glad you brought up the subject of Atenolol. My sister is on that drug (she doesn't have HCM she takes it for something else) and she has been very free of side-effects right from the beginning. The only thing she says she doesn't like is that it dropped her heartrate a good bit. But hey, in my case that's exactly what i'm looking for! As i understand it Atenolol is also a bit cheaper than Toprol, so when my free samples run out i won't be paying an arm and a leg for the stuff.

                    If i were to switch, and i know many of you have tried many different drugs... do you have to be 'weaned off' the Toprol slowly then start all over with a low dosage of Atenolol, or do you just swap meds dose for dose? I know there's risks involved with stopping beta-blockers abruptly, but i wasn't sure what the protocol was if you were just changing to a different one.

                    Thanks!

                    Jim
                    "Some days you're the dog... some days you're the hydrant."

                    Comment


                    • #25
                      Re: Toprol-XL (metoprolol)

                      Hi Jim,

                      In my case they just swapped out the drug. No weaning off. As for the cost I am deeply fortunate to be employed with good health care. I spent 17 months unemployed and got my diagnosis while unemplolyed as well. So I am keenly aware of how it can affect you. So in my case I pay only a co-pay so I don't know the price. And like you, I had only samples from the docs to work with before.

                      Best of luck

                      Doug
                      NEMC's (Boston) First Myectomy 7-22-2003

                      Comment


                      • #26
                        Re: Toprol-XL (metoprolol)

                        Doug ,You need to talk to either your pharmicist or you cardioligist , Atenolol 's mfg insert states "no increse in benifits with dose of over 100mg" . mine doubled mine to 200 and i have had nothing but trouble since .That was in sept ,01 and I am just now getting straightened out . so be careful and check -it out !! now I know we are all different ,but this is the mfg. recomendation. good luck , Rich
                        Allways remember you cannot control the wind!!
                        However you can adjust your sails!!

                        Comment


                        • #27
                          Re: Toprol-XL (metoprolol)

                          Two things:

                          Well, Jim, yes, two months is a long time and if you don't feel better, then you don't. There are other beta-blockers to try, and other drugs.

                          You CAN switch from beta-blocker to beta-blocker without tapering down and then up again. It is going cold turkey on _all_ beta-blockers that is going to get you into trouble.

                          take care

                          S

                          Comment


                          • #28
                            Re: Toprol-XL (metoprolol)

                            Thanks Sarah,

                            It's good to know that i don't have to go through the long process all over again when switching

                            Jim
                            "Some days you're the dog... some days you're the hydrant."

                            Comment


                            • #29
                              Re: Toprol-XL (metoprolol)

                              Jim,
                              Switching meds is something that you will have to discuss carefully with your docs. There maybe something in that beta blocker that works well for you and that is where you are getting the benefits from.
                              In my case I was once given a generic (by mistake) although it was to be the "same" my symptoms kicked up BIG time after 4 days on it...I went back to my normal meds and all was fine??
                              All drugs are not the same and caution must be used when switching from one to another.
                              Yes, Atenolol is cheaper and works very well for many people...but Toprol has properties that are slightly different also Toprol has a long acting formula... I am not sure which your on but atenolol is not long acting so you may have to take more pills per day (that will add to the cost).

                              Just more to think about (I know you love to think...and research )

                              Be well,
                              Lisa
                              Knowledge is power ... Stay informed!
                              YOU can make a difference - all you have to do is try!

                              Dx age 12 current age 46 and counting!
                              lost: 5 family members to HCM (SCD, Stroke, CHF)
                              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                              Therapy - ICD (implanted 97, 01, 04 and 11, medication
                              Currently not obstructed
                              Complications - unnecessary pacemaker and stroke (unrelated to each other)

                              Comment


                              • #30
                                Re: Toprol-XL (metoprolol)

                                I can't find that in the literature of Atenolol that over 100 mg. there is no benefit. Thing is my cardiologist is one of the top in this field. I see the group at Tufts NEMC. I find it hard to believe they would prescribe over 100 if it was a no benefit thing.


                                Doug
                                NEMC's (Boston) First Myectomy 7-22-2003

                                Comment

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