If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

ACE Inhibitors

Collapse

About the Author

Collapse

Marty Most of my career has been spent in emergency management. married no children. Find out more about Marty
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • ACE Inhibitors

    I was recently changed from verapamil (240) and maxide to mavik, plavick and zocor. I don't see anything (so far) on the site about ACE inhibitors. Anyone have any comment?
    Marty Bishop

  • #2
    ACE can cause problems in some with HCM - it is not commonly used. I would suggest a consult with an HCM specialist to evaluate your meds.
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Lisa, what is Zocor. I know it's supposed to help with high cholesterol, but what does it do with HCM?
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

      Comment


      • #4
        Zocor has nothing to do with HCM - just because someone has HCM does not mean that you are not going to develope other forms of heart disease... so if you have high cholesterol, it is wise to treat that as well.
        Lisa
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)

        Comment


        • #5
          Lisa,

          I knew that high cholesterol has nothing to do with HCM, but the doc alluded to Zocor having some sort of beneficial effect for people who do have HCM. Something about perhaps helping decrease septal size? I don't see how, though. Any thoughts?

          R
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment


          • #6
            No.. I have not ever seen any data to suggest such a thing.
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Who is on forst....

              I was put on Mavak by a "hospitalist". Since then (about 6 weeks) I have become more tired, more short of breath, and cough far more frequently. I just feel listless and BP stays at about 170/80. When I called my cardiologist I was they prefer my GP to regulate blook pressure. To me that's a big clue that as an HCM patient I need a specialist.

              I am on an HMO. Any advice on how to get them to allow a referral, and how to approach the GP or cardiologist? Do most of us in FL go to Minnesota? That's a chilling thought!
              Marty Bishop

              Comment


              • #8
                Marty,

                I would ask the GP about the referral. Please call Lisa to find out which specialist center would be best for you.

                Reenie
                Reenie

                ****************
                Husband has HCM.
                3 kids - ages 23, 21, & 19. All presently clear of HCM.

                Comment


                • #9
                  Marty - You need a specialist ASAP - Call the office on Tuesday morning and we can talk about some centers and get you on the way.
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

                  Comment

                  Working...
                  X