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Stroke brought on by Metoprolol

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  • Stroke brought on by Metoprolol

    I was recently diagnosed as having a small stroke. The doctor said it was because I stopped taking my metoprolol. I hate the side effects. I am now on Atenolol. Has anyone had, or heard of having a stroke because of this? I am actually diagnosed with IHSS which is a similar but slightly different diagnosis than HCM.

    Doug
    NEMC's (Boston) First Myectomy 7-22-2003

  • #2
    Doug,

    Welcome to our board. I don't know the answer about your medication question. I do know that some medicines work better for some people than others. I can tell you something about IHSS. It IS HCM. IHSS is an old name, one of many that has been used for HCM. HCM is now the preferred name, hypertrophic cardiomyopathy. This leads me to believe your doctor may not be very up-to-date on HCM treatment. You can email Lisa, our HCMA president @ [email protected] or you can call her @ 973-983-7429. She has a tremendous list of providers all over the country who are specialists in HCM. At the very least she can get an information packet sent to you and/or your provider.

    Please read through the introductory parts of this site. It contains a lot of information about HCM and it's diagnosis, treatment, etc. If you have any questions, please feel free to ask. We'll help any way we can.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Doug -
      Welcome - yes IHSS is HCM -
      To attempt to answer your question did you have a stroke because you stopped your metroprol.... I can not say I have heard that one before...HOWEVER to say that you had a stroke due to your HCM ..yes that is common.
      I can not state strongly enough HOW important it is to be evaluated by a specialis in HCM. Your treatment plan needs to be set up your risks of sudden death need to be evaluated and we need to see what was the underlying cause of the stroke. Have you been in a-fib much?
      Are you now on a blood thinner?

      At this moment I do not have a voice...long story... but please PM me back with the info. and we can start from there.

      I am glad you found us and again welcome to the site!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Doug,

        With prescriptions for all beta-blockers (metoprolol is a beta blocker) there is a warning not to discontinue the drug suddenly because one may precipitate rebound high blood pressure, angina, myocardial infarction, and ventricular arrhythmias. A stroke can be caused by bleeding resulting from high blood pressure or a blood clot.

        I don't know whether you stopped the drug suddenly or withdrew it over two or more weeks. But atenelol is also a beta blocker, so don't stop it suddenly!

        I agree the side effects are not any fun. My doctors and I are working on different drugs and dosages in an effort to find the best balance between my HCM symptom control and the beta blocker side effects. I'm hopeful of reaching a good resolution.

        Pat

        Comment


        • #5
          I was actually diagnosed about 20 years ago with IHSS. I sought a second opinion and he said I might have it he could not confirm the diagnosis. So I went with the latter. I discounted the disease totally and wrote off my increasingly progressive symptoms as couch potatoe syndrome even though I was relatively active still. It was rediscovered when I ended up on the operating table for a ruptured appendix last April. The cardiologist (a seemingly up to date very inteligent and likeable woman of about 40) said it was IHSS. I did some searching and found this site. When I asked her about the HCM-IHSS connection she explained that although it is the same she saw it a little different. Honestly, I could be remembering it a little off too.

          I did in fact stop taking my metaprolol suddenly but the stoke happened almost 3 weeks later. I am doing lots better on the atenolol now. Less side effcts for me. I am not on anything else as of now. I have had increasing symptoms even over the last year. I get out of breath getting ready for work. I avoid stairs at all cost. I have a lot of chest pain from even one flight, although, the atenolol seems to help me lessen those pains. I have had consistant blood pressure in the 150 or 155 over 100 to 110 range.

          Actually I am finally being treated by a primary care doc who is looking at a lot of other things. I have a fluid problem in my lungs, but don't smoke. i understand this can be an effect of HCM. Today i get the results of chest x-rays, a brain scan (due to the stroke they think I had) and blood work. Perhaps things will change this afternoon. I would welcome any info I can get. I am 38 years old and used to be very active and now feel like I am about 70. I work for Harvard/Mass General hospital so you would think there would be some specialists right here.

          thank you all for your information. I will continue to watch and read here and hope to get better educated about this whole thing.

          Doug
          NEMC's (Boston) First Myectomy 7-22-2003

          Comment


          • #6
            around the corner

            Dear Doug,

            Like everyone else, I will echo ---IHSS IS HCM. My mom's doctor called IHSS for ever (and this was 20-25 years ago, too, before the name HCM existed). It is pretty much old school to call it IHSS. See, HCM is genetic and they didn't think that it was, so it was "I" --idopathic.

            Anyway, while HCMA policy is NOT to give out doctor's names and numbers, however, you are in Boston and the Tutfts-NEMC has an HCM center we highly recommend and if I were you, I would just get an appointment ASAP.

            You really need to see a specialist, there are treatment options beyond a beta-blocker for you and there is no sense in waiting to feel worse.

            let us know,

            S

            Comment


            • #7
              Doug,

              I'll try to explain the IHSS thing.

              I - idiopathic - of unknown origin
              H - hypertrophic - thickened
              S - subaortic - below the aorta
              S - stenosis - narrowing of a duct or passage

              So that means below the aorta you have a thickened muscle that narrows a duct or passage and they don't know where the condition came from.

              H - hypertrophic - thickened
              C - cardio - having to do with the heart
              M - myopathy - disease of muscle or tissue

              So this is a dissease of the heart muscle that causes it to thicken. Same thing.

              It sounds to me, again, that your doctor could benefit from the information packet. From your symptoms, inability to climb stairs, etc, it sounds like you may have obstruction with HCM. (HOCM) Another echo would determine that conclusively. Atenolol is good, but sometimes you just need something else or something more. You're right, the fluid in the lungs can be because your HCM is also causing CHF, congestive heart failure. It is manageable. Please, please call or email Lisa for a specialist to contact. There are many good doctors in your neck of the woods. Take care of yourself and let us know how you're doing.

              Reenie
              Reenie

              ****************
              Husband has HCM.
              3 kids - ages 23, 21, & 19. All presently clear of HCM.

              Comment


              • #8
                I would suspect you may be seening Dr. Ho...am I correct?
                Look at our advisors page...
                Lisa
                Knowledge is power ... Stay informed!
                YOU can make a difference - all you have to do is try!

                Dx age 12 current age 46 and counting!
                lost: 5 family members to HCM (SCD, Stroke, CHF)
                Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                Therapy - ICD (implanted 97, 01, 04 and 11, medication
                Currently not obstructed
                Complications - unnecessary pacemaker and stroke (unrelated to each other)

                Comment


                • #9
                  Thanks for your suggestions. No it wasn't that doctor. However, I got in contact with the Tufts NEMC (New England Medical Center) and now have a new cardiologist who works in the HCM Clinic there. I am sure to get good attention there and the beauty of this is it is just one subway stop away from my commute. Should make things easy. Thanks again for your help.

                  Doug
                  NEMC's (Boston) First Myectomy 7-22-2003

                  Comment


                  • #10
                    Doug - glad to hear your on the way to TUFTS and that it is so convient for you!
                    Take care!
                    Lisa
                    Knowledge is power ... Stay informed!
                    YOU can make a difference - all you have to do is try!

                    Dx age 12 current age 46 and counting!
                    lost: 5 family members to HCM (SCD, Stroke, CHF)
                    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                    Therapy - ICD (implanted 97, 01, 04 and 11, medication
                    Currently not obstructed
                    Complications - unnecessary pacemaker and stroke (unrelated to each other)

                    Comment

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