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What medications are you taking?

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Lisa Salberg Find out more about Lisa Salberg
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  • murrayfan33
    replied
    Re: What medications are you taking?

    I take VERAPAMIL, 180 mg. per day, ATENOLOL, 250 mg. per day,NORPACE,450 mg. per day, ASPIRIN, 81 mg per day, PRILOSEC,20 mg per day { to keep the stomach under control } and PAXIL,20 mg per day, for the depressed days.[/i]

    Leave a comment:


  • mjesaitis
    replied
    Re: What medications are you taking?

    Being in end-stage HCM, besides my HCM meds I was taking 160mg of Lasix(generic Furosemide) daily for the fluid retention I am constantly having due to CHF.

    About a month ago I started seeing a Nephrologist (Kidney/Hypertension specialist) because of an ER doc's recommendation during my last visit to the ER. The lab work for my kidney levels was not good.

    The Nephrologist changed my diuretic to 80mg of Demadex (generic Torsemide) daily, and it has made a world of difference! He said it would be easier on my kidneys than the Lasix. My next appointment with him is Friday and hopefully, my lab work will be back to normal. I feel 100% better though so I'm happy with that. Thought I'd share in case anyone else is finding that Lasix is not working as it used to or you're having to increase dose to get same results.

    Matt

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  • Beverly Raskind
    replied
    Re: What medications are you taking?

    I take 160mg of Inderal LA, 15mg of Zestril & 20mg of Lasix 3 times a week or as needed.

    Beverly Raskind

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  • Danielaeh
    replied
    Re: What medications are you taking?

    Dear Karen!

    Thank You!!!
    And all the people sharing their stories!
    I will ask our cardiologist about Q10 next time.
    We will have an examination tomorrow.

    Leave a comment:


  • Dee
    replied
    Re: What medications are you taking?

    Right now Dylan is taking 120mg Propranolol and 60mg Verpapmail. He's almost 4 years old and 31 pounds.

    Dee

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  • nancylv
    replied
    Re: What medications are you taking?

    My 15 yr. old son takes cq10 100 mg everyday. He also takes a mega vitamin everyday. All I can tell you is that he is very active and has more energy than I do without a genetic heart disease. He says when he doesn't take them that he doesn't feel as good. He has no obstruction, is either 17 or 29 on septum depending on which Dr. you talk to, no symptoms, sudden death 1st and only symtom in 2001, AICD 3 days later. Thankfully, no problems so far to date.

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  • Karen P
    replied
    Re: What medications are you taking?

    Hi Daniela,

    Co Enzyme Q10 is a vitamin-like substance or chemical found in every human cell. It's highly concentrated in the liver & in the heart. Its job is vital in the production of energy in the cell.

    CoEnzyme Q10 is used for many different reasons; cancer, diabetes, muscular dystrophy & the heart. Studies have shown that it's effective in lowering cholesterol and blood pressure and benefits patients with congestive heart failure and angina. Our pediatric cardiologist also feels that it can help to keep the heart in a normal rhythm, but there really isn't much data out on that.

    Certain medications can actually lower your co enzyme levels in your body including some beta blockers. Also, as we age our natural Co10 levels begin to decrease.

    It's an expensive supplement and for a long time my husband didn't feel it was doing anything for him, except rob him of his $$. In 1999 he ran out Co10 & decided he wasn't going to buy anymore! From December of 1999 to June of 2000 his health declined drastically. It was a horrible time in our household- he was exhausted, sleeping at lunch & before the commute home. He actually lost his job in June 2000 due to his failing health, though his boss never said those exact words. Sometime before June, Roy told me that he stopped his Co10 which I didn't realize. He started up again & his health greatly improved after a couple of weeks! It wasn't overnight, but after time he got his strength back & wasn't as symptomatic, especially the fatique. He is now a believer (so amI) & will never let the bottle run dry. It's always nice to know that what you are taking is truly helping. But it's not the same for everyone - I know that. You need to run it by your doctor and see what they think.

    WARNING IF YOU ARE TAKING COUMADIN - this supplement interferes with coumadin. You need to be followed closely by your doctor until your INR is at the proper level.

    Daniela, I hope this helps! Take care.

    Karen

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  • Danielaeh
    replied
    Re: What medications are you taking?

    Hi!

    I forgot to write the info. in my letter.
    Here it is:
    My husband Ron (35 years old): atenolol (betta blocker) - 25 mg a day.
    + Amiadorone (anti arrythmics)- 100 mg. a day.

    My son Matan (5 years old): Amiadorone: 50 mg. / day + Deralin (Propanolol): 12.5 X 4 a day. It is a lot!!! Like For an elephant and not an infant!!!

    Leave a comment:


  • Danielaeh
    replied
    Re: What medications are you taking?

    Dear Karen P:

    I read your family takes CoEnzymeQ10.
    It was advised to you by your cardiologist?
    What is your experience with it?
    I will appreciate any response from you or the forum taking CoEnzymeQ10.

    Leave a comment:


  • Karen P
    replied
    Re: What medications are you taking?

    I have 3 family members taking meds for HCM and are all on something different.

    My husband; atenolol, coumadin, lasix, 200 mg CoEnzymeQ10.

    My daughter takes 50 mg atenolol, florinef (for fluid volume), 100 mg CoEnzyme Q10.

    My son takes 50mg atenolol, 75mg CoEnzyme Q10.

    Leave a comment:


  • rilda moore
    replied
    Re: What medications are you taking?

    Originally posted by Lisa Salberg
    choose 1 box that best fits your cardiac medications. We will be using "classes" rather than brand/generic name.
    Example:
    Corgard is a beta blocker
    Verapimil is a calcium channel blocker
    Amio is an antiarrythmic
    Lasix is a diuretic

    **this poll was updated with new options on January 12, 2003**
    I take 180 mg of verapimil , 50 mg of topral 2 times a day,2.5 mg of lisinopril once a day & 1 spirnolacton (25 mg) a day.

    Thank you for a great web site. Makes me feel better to hear what others are feeling and taking for this problem. It took a long time for my Dr. to decide this was my problem. I had been bothered for several years before I was told what I had.

    Best wishes to all of you and take care.

    Rilda

    Leave a comment:


  • Marty
    replied
    ACE Inhibitors

    I was recently changed from verapamil (240) and maxide to mavik, plavick and zocor. I don't see anything (so far) on the site about ACE inhibitors. Anyone have any comment?

    Leave a comment:


  • Sarah
    replied
    well....

    Dear Bobby,

    Do you think your anxiety is so great that it prevents you from functioning normally? That should be the test for whether you take something like Paxil. Some people have had a lot of problems with Paxil.

    Are you seeing an HCM specialist? I don't know enough about your situation to give you any worthwhile advice at this point. You can PM me in total confidence anything you don't want to post to the board.

    However, I would be very careful about taking any anti-depressant or anti-anxiety unless you really can't move without it.

    S

    Leave a comment:


  • Bobby Raines
    replied
    I am currently on 420mg verapamil and my docter wants to put me on paxil for anxiety. any advise

    Leave a comment:


  • Reenie
    replied
    Well, my husband is taking atenolol and Zocor. The doc thinks that although his cholesterol is slightly high, the Zocor may have other benefits. Anyone know anything about this?

    Leave a comment:

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