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What medications are you taking?

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Lisa Salberg Find out more about Lisa Salberg
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  • #16
    Re: What medications are you taking?

    Dear Karen P:

    I read your family takes CoEnzymeQ10.
    It was advised to you by your cardiologist?
    What is your experience with it?
    I will appreciate any response from you or the forum taking CoEnzymeQ10.
    Wishes for healh, peace and love!

    Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
    Haifa - Israel.

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    • #17
      Re: What medications are you taking?

      Hi!

      I forgot to write the info. in my letter.
      Here it is:
      My husband Ron (35 years old): atenolol (betta blocker) - 25 mg a day.
      + Amiadorone (anti arrythmics)- 100 mg. a day.

      My son Matan (5 years old): Amiadorone: 50 mg. / day + Deralin (Propanolol): 12.5 X 4 a day. It is a lot!!! Like For an elephant and not an infant!!!
      Wishes for healh, peace and love!

      Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
      Haifa - Israel.

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      • #18
        Re: What medications are you taking?

        Hi Daniela,

        Co Enzyme Q10 is a vitamin-like substance or chemical found in every human cell. It's highly concentrated in the liver & in the heart. Its job is vital in the production of energy in the cell.

        CoEnzyme Q10 is used for many different reasons; cancer, diabetes, muscular dystrophy & the heart. Studies have shown that it's effective in lowering cholesterol and blood pressure and benefits patients with congestive heart failure and angina. Our pediatric cardiologist also feels that it can help to keep the heart in a normal rhythm, but there really isn't much data out on that.

        Certain medications can actually lower your co enzyme levels in your body including some beta blockers. Also, as we age our natural Co10 levels begin to decrease.

        It's an expensive supplement and for a long time my husband didn't feel it was doing anything for him, except rob him of his $$. In 1999 he ran out Co10 & decided he wasn't going to buy anymore! From December of 1999 to June of 2000 his health declined drastically. It was a horrible time in our household- he was exhausted, sleeping at lunch & before the commute home. He actually lost his job in June 2000 due to his failing health, though his boss never said those exact words. Sometime before June, Roy told me that he stopped his Co10 which I didn't realize. He started up again & his health greatly improved after a couple of weeks! It wasn't overnight, but after time he got his strength back & wasn't as symptomatic, especially the fatique. He is now a believer (so amI) & will never let the bottle run dry. It's always nice to know that what you are taking is truly helping. But it's not the same for everyone - I know that. You need to run it by your doctor and see what they think.

        WARNING IF YOU ARE TAKING COUMADIN - this supplement interferes with coumadin. You need to be followed closely by your doctor until your INR is at the proper level.

        Daniela, I hope this helps! Take care.

        Karen

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        • #19
          Re: What medications are you taking?

          My 15 yr. old son takes cq10 100 mg everyday. He also takes a mega vitamin everyday. All I can tell you is that he is very active and has more energy than I do without a genetic heart disease. He says when he doesn't take them that he doesn't feel as good. He has no obstruction, is either 17 or 29 on septum depending on which Dr. you talk to, no symptoms, sudden death 1st and only symtom in 2001, AICD 3 days later. Thankfully, no problems so far to date.

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          • #20
            Re: What medications are you taking?

            Right now Dylan is taking 120mg Propranolol and 60mg Verpapmail. He's almost 4 years old and 31 pounds.

            Dee
            Dee, Mom to Dylan
            (Almost 7 yrs old, HOCM, Endocarditis/Stroke 1/01, Myectomy/Valve Repair 4/04)

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            • #21
              Re: What medications are you taking?

              Dear Karen!

              Thank You!!!
              And all the people sharing their stories!
              I will ask our cardiologist about Q10 next time.
              We will have an examination tomorrow.
              Wishes for healh, peace and love!

              Daniela E-H, Mother to Matan-Ben (13 years old) who had his AICD implantation (29/03/04) and Myectomy (14/12/08) and Noga (4 years old) not affected
              Haifa - Israel.

              Comment


              • #22
                Re: What medications are you taking?

                I take 160mg of Inderal LA, 15mg of Zestril & 20mg of Lasix 3 times a week or as needed.

                Beverly Raskind

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                • #23
                  Re: What medications are you taking?

                  Being in end-stage HCM, besides my HCM meds I was taking 160mg of Lasix(generic Furosemide) daily for the fluid retention I am constantly having due to CHF.

                  About a month ago I started seeing a Nephrologist (Kidney/Hypertension specialist) because of an ER doc's recommendation during my last visit to the ER. The lab work for my kidney levels was not good.

                  The Nephrologist changed my diuretic to 80mg of Demadex (generic Torsemide) daily, and it has made a world of difference! He said it would be easier on my kidneys than the Lasix. My next appointment with him is Friday and hopefully, my lab work will be back to normal. I feel 100% better though so I'm happy with that. Thought I'd share in case anyone else is finding that Lasix is not working as it used to or you're having to increase dose to get same results.

                  Matt

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                  • #24
                    Re: What medications are you taking?

                    I take VERAPAMIL, 180 mg. per day, ATENOLOL, 250 mg. per day,NORPACE,450 mg. per day, ASPIRIN, 81 mg per day, PRILOSEC,20 mg per day { to keep the stomach under control } and PAXIL,20 mg per day, for the depressed days.[/i]
                    Hello, I`m Craig, I have H.O.C.M. and I`m making the most of my life with my daughter and my wife!!!

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