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My Father - Larry Flanigan

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Lisa Salberg Find out more about Lisa Salberg
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  • Re: My Father - Larry Flanigan

    Update -Sunday August 27

    Dad walked across his room today! YEH! He is getting ready for his road trip back to NJ. Let the count down begin! Mom and Dad had a visit today from Mike who had his myectomy last week and looks like he will be heading home tomorrow! It was very nice of him to stop by and say hello to mom and dad.

    I will take the drive out on Tuesday and return home the next day.

    More later,
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • Re: My Father - Larry Flanigan

      Lisa

      Glad to know your dad is doing so well that he gets to go home and I bet you are relieved your shoulders i'm sure have dropped, be careful on your next trip and look forward to hearing mom and dad are home and comfy in their own home

      take care

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

      Comment


      • Re: My Father - Larry Flanigan

        Lisa and family,

        I'm so glad! I hope your dad gets home with no problems and then home heals him.

        Lisa, be careful heading back.

        Debbie

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        • Re: My Father - Larry Flanigan

          Safe travels - Linda

          Comment


          • Re: My Father - Larry Flanigan

            So glad to hear he is doing well enough to be released soon!

            Just a tiny bit of advice if I may, and maybe you've already thought of it....I don't know what kind of vehicle he'll be riding in, but if it is an SUV, take along a little step stool for him to use to get in and out of the car, since you'll need to stop every hour or two to allow him to walk a bit. That step up into the SUV didn't seem so large to me until I had my myectomy. Luckily, my husband (or someone) thought of it and had a step-stool on board with us. Our normal 8 1/2 hour drive took about 12 hours with all the stops, but oh how great it was to be HOME!

            God bless you guys as you travel!
            Theresa
            Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

            Comment


            • Re: My Father - Larry Flanigan

              No worries about what type of vehicle will be used to get him home.

              As might have been mentioned on this thread earlier, my dad has been a member of the local volunteer fire and rescue squad for approx 50 years. He was still "going on calls" the week before the surgery. His buddies from the rescue squad offered to bring out the ambulance if it was needed to get him back to New Jersey. And since he is not going directly home, but rather to a rehab facility to work on getting more mobile, he does need the ambulance. He was so touched when we told him that his guys were willing to make the 7 hour (one way) trip to come get him.

              Lisa has been working with the rescue squad buddies to set up a team to drive out on Tuesday and back on Wednesay. He will no doubt be barking orders at his crew the entire trip, which I underestand he is very good at durring the rescue calls.

              So how is this for timing, for those that don't know, Mom and Dad have a "winter" home in Key Largo, Florida. Anyone been watching the weather channel this weekend? But like my mother has stated numerous times, they understand the risk of having a place in the Keys. Whatever happens, happens. But, gee the timing could not have been worse - Tuesday into Wednesday is when the storm is projected to come through the Keys.

              Today's goal is to figure out which rehab facilty he will be coming home to on Wednesday. For you local folks, did you know that Dover General (St. Clairs - Dover, or whatever else they may be calling it these days), has an 18 bed rehab facility now??? That was news to me? Anyway, the choice appears to be between the facility in Dover or the facility in Morristown. Depends on bed availability and his specific needs.

              Meanwhile, we need to start finding some "cow" related welcome home decorations for when he actually gets HOME in a week or two.

              Lynn

              Comment


              • Re: My Father - Larry Flanigan

                TODAY IS THE BIG DAY!!!

                A slight change in plans, but dad is coming home to New Jersey today. However, instead of going directly to a rehab facility the decision has been made that he needs to work up his eneregy level a little before the rehab facility can take him. Rule of thumb is that the person must be capable of 3 hours of physcial therapy a day and although he has been making great improvements over the past week he is not at that point yet. So we have found a place for him in a short stay nursing home that is geared to situations like his. They will work with him to get the energy level up and as soon as he is ready he will transition over to the rehab facility.

                Lisa and Stacey drove out yesterday so they can drive mom home and also help coordinate dad's release from the hospital. And dad's crew from the rescue squad drove out the "rig" yesterday. The plan is to leave Cleveland first thing today. The hospital is supposed to have him ready to leave by 8:00 a.m., but we all know that hospitals are rarely on schedule...

                They left for Cleveland on July 16th and his surgery was on July 20th. Been a long 7 weeks, but they are only hours away from being back in New Jersey!!! And to help top off a great day, the hurricane wimped out from the sounds of things so the Key Largo house should be ok!!!!!!!!!!! So the goal now is to get dad ready in time to make their annual migration to Key Largo in January!!!!

                Lynn

                Comment


                • Re: My Father - Larry Flanigan

                  Lynn,

                  Looks like dad is headed in the right direction.. EAST.

                  Stuart
                  Cleveland Myectomy Club
                  August 31, 2004

                  Comment


                  • Re: My Father - Larry Flanigan

                    So very happy that today has arrived. Luck to all as you migrate back to New Jersey. My best to your dad as he begins his homeward journey. There truley is no place like home!

                    Pam
                    Dx @ 47 with HOCM & HF:11/00
                    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
                    Lead failure,replaced 12/06.
                    SF lead recall:07,extracted leads and new device 2012
                    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
                    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
                    Genetic mutation 4/09, mother(d), brother, son, gene+
                    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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                    • Re: My Father - Larry Flanigan

                      Tranquiltity base, the eagle has landed.
                      Lisa\'s favorite (and smarter) big brother.

                      Comment


                      • Re: My Father - Larry Flanigan

                        Yay! I'm so happy for your whole family.

                        Reenie

                        Reenie

                        ****************
                        Husband has HCM.
                        3 kids - ages 23, 21, & 19. All presently clear of HCM.

                        Comment


                        • Re: My Father - Larry Flanigan

                          Congrats!
                          Theresa
                          Philippians 4:4-9; Wife, & 39 yo Mom to 9 year old son and 6 year old son/daughter twins; Diagnosed with HoCM 1999; Cleveland Clinic Myectomy and ICD, January 2006.

                          Comment


                          • Re: My Father - Larry Flanigan

                            UPDATE - August 31, 2006

                            We arrived back yesterday at about 5:00pm. I had left home around 11:00am on Tuesday - rolled in to Cleveland by 8:00pm and back on the road at 9:00am the next morning and arrived in Parsippany at 5:00pm (needless to say stayed in bed until 9:00am this morning!) The ride out was mostly raining and nasty the road home basicly smooth sailing all the way and no read traffic back ups to speak of.

                            Tuesday morning between 9 and 10:30 were about the most tense times I can recall as the rehab centers had turned us down due to his inability to do the 3 hours of work and we had NO PLACE to bring him home to. Then I remembered my sister-in-law had taken a new position with a large nursing home firm and I called her. It happens that the company she worked for had a bed for him and a rehab program geared at post cardiac surgery patients! TA DA! By 11:15 we had the room locked in and records sent. This place looks like a hotel -and a nice one at that! It looks nothing like a 'nursing home' but more like a spa!

                            Dad hit the bed in his private room with a private bath. I met the staff, they processed the papers and we took mom HOME. I do not think she had ever been so happy to see home in her life.

                            MANY MANY MANY thanks to Adam, Bob, Bob, and Brandon who took there time to come out and pick up dad and bring him back to NJ. Dad teared up as we turned the corner and hit the big windows at the temporary enterance at CCF and he saw the rig and his guys waiting for him. It was a very emotional moment and one that my father has given a lifetime of work for. When I have the time and the emotional strength to tell you more about it I will.

                            Today I will head over to see dad and help get him comfortable. Local friends feel free to visit starting this weekend he is at Care-One on MazdaBrook Dr. in Parsippany (near the Sheraton Tara Hotel)Please do not send flowers as he has allergies.

                            It has been a long road to get this far, but it is not over YET.

                            Thanks to everyone and I will write more later,
                            Lisa
                            Knowledge is power ... Stay informed!
                            YOU can make a difference - all you have to do is try!

                            Dx age 12 current age 46 and counting!
                            lost: 5 family members to HCM (SCD, Stroke, CHF)
                            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                            Therapy - ICD (implanted 97, 01, 04 and 11, medication
                            Currently not obstructed
                            Complications - unnecessary pacemaker and stroke (unrelated to each other)

                            Comment


                            • Re: My Father - Larry Flanigan

                              Lisa.

                              We are all so happy with you for your dad's recover this far. Thanks for letting us take this journey with you.

                              Peace,

                              Leon
                              God Squad co-moderator
                              Nothing is as gentle as strength and nothing is as strong as gentleness

                              Comment


                              • Re: My Father - Larry Flanigan

                                Lisa, I am so glad he is back close and home is getting even closer.
                                Midge

                                Diagnosed in 1977, Myectomy in 1981 @ Mayo Rochester
                                ICD&Pacemaker 1996
                                Heart transplant March 19, 2004 @ Mayo Rochester
                                Mom of Kaye.

                                Comment

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