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My husband has been recently with HCM

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  • My husband has been recently with HCM

    I am would like to know if there are any doctors in Texas that are well educated with HCM? I am concerned about what to do and not do. One of my concerns is I am afraid to have sex since that makes the heart beat faster. I have fears that by having sex this will cause something bad to happen. I have so many questions I don't even know where to start.

    Debbie

  • #2
    There is an HCM center in San Antonio. Check out this link from the links page of this website:


    http://cardiology.uthscsa.edu/hcm/index.html
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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    • #3
      Hi Debbie, welcome. Remember, your husband has lived with this for a while without even knowing so something that has been part of his routine probably isn't going to be detrimental. Please give Lisa Salberg a call, her phone number is at the bottom of this page. We're here for you to ask questions, listen, or just support you. Let us know if you need anything.

      Reenie
      Reenie

      ****************
      Husband has HCM.
      3 kids - ages 23, 21, & 19. All presently clear of HCM.

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      • #4
        Like any other physical activity, hubby should do what he feels "up" to (oh, sorry, I just couldn't pass that pun up, oh shoot. )

        It is totally natural to be concerned about what an HCMer can and can't do and we've all faced it at one point or another.

        However, the majority of us live very normal lives and a full life span! Truly.

        It isn't humanly possible to avoid every instance of an elevated heart rate and we don't try. There is medication if need be.

        Good luck with a doctor and I recommend reading as much of this site as possible, not just the board. You can also search the board for topics such as this one that have usually been talked about before.

        take care,

        S

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        • #5
          Living a normal life is possible. If he is newly diagnosed I am sure you both have LOTS of questions and lots of fears, we have all been there.

          Sex is a normal part of life and there should be no reason that you and your husband can not enjoy a healthy relationship in this area. The stress of diagnosis make tend to make you both, lets just say, less then in the mood - but this will pass and you will come to understand that nothing has really changed - HCM has been with you both for many years in all likelihood.

          Please call the office and we can get you all the information you will need to start living your life with HCM and not letting HCM rule your life.

          Be well,
          Lisa
          Knowledge is power ... Stay informed!
          YOU can make a difference - all you have to do is try!

          Dx age 12 current age 46 and counting!
          lost: 5 family members to HCM (SCD, Stroke, CHF)
          Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
          Therapy - ICD (implanted 97, 01, 04 and 11, medication
          Currently not obstructed
          Complications - unnecessary pacemaker and stroke (unrelated to each other)

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