Recently diagnosed

[Jayson Contributor-in-Training Find all posts View Profile Close Jayson]

Hi to all, I found this great site while searching for new information about this disease. I've read most of the posts through out the site. I'd been having difficulty exercising the last 6 months. I'd feel like I was going to faint and my heart rate was going through the roof. This news couldn't have come at a worse time. My wife was just in ICU for week with Pulmonary Embolism in her lungs. A week later her father has a heart attack and her mother has now developed an irregular heart beat.

I come from a long line of this disease IE.. Father; Mother (deceased); Sister (sudden death 18); Sister; Grandpa (sudden death); Uncle (sudden death); numerous cousins and many more. I was checked when I was 15 and once again when I was 24. I had negative results both times. This time I was not so lucky. I'm 32, married, and have 2 kids. I have a septum thickness of 22mm and the Doc says I have obstruction. He started me on Metoprlol 75mg a day. I'm getting used to it and will be consulting with a Dr. Lee at UCSF in San Francisco in a week, for a ICD. This board will hopefully create a safe haven for me to come and read about others with this condition.

[Sarah Brave Heart Find all posts View Profile Close Sarah]

Dear Jayson,

Wow. You have a lot on your plate and I'm very sorry your family has been struck so hard. I'm glad you found us and are getting an ICD consult. Sounds like it would be a smart move. Please see the recent posts on Guidant's troubles, by the way.

Please keep us posted on how you are doing and ask any questions you may (should I say will?) have.

Hang in there --you aren't alone.

Sarah

[shirleymahoney Brave Heart Find all posts View Profile Close shirleymahoney]

Jayson

Welcome to our little community that seems to be getting very big these days, Sarah is right you have alot on your plate but please take care of yourself so you can be around for your family, with all the SCD in your family it is very wise you get that ICD and have your kids checked also, welcome aboard

Shirley

[Pam Alexson Moderator Find all posts View Profile Close Pam Alexson]

Jayson, Welcome.

We are all here to help when you need it . I am sincerely sorry for all your troubles.

Pam

[Reenie Super Moderator Find all posts View Profile Close Reenie]

Hi Jayson. We're here when you're ready to ask questions, read about HCM, or just vent a little. I hope that your family's hard times are over with for a long time.

Reenie

[Largehearted Moderator Find all posts View Profile Close Largehearted]

Hi Jayson.

Whew! You are going through a lot. Please know that we care and will provide you with a safe place to vent when you need to, ask questions when you want to, and chime in on the discussions at will. With your permission I will be praying for you as you sort everything out.

Peace,

Leon

[Janet McClure Barely Heart Find all posts View Profile Close Janet McClure]

Welcome

I am so glad you found this site. It has been wonderful for me. My son was diagnosed in January as well as my exhusband, his brother and their father. I am sorry to hear about how your family has been affected. This is a wonderful, caring group of people and you will always find support here! Welcome! Janet

[Debbie Major Contributor Find all posts View Profile Close Debbie]

Hi Jayson,

Nice to meet you, and welcome!

You've been through the mill with this disease.

Take care, and hope to hear from you soon.

Debbie

[Jayson Contributor-in-Training Find all posts View Profile Close Jayson]

Thank you all...

To everyone, thank you very much for your thought and prayers they mean a lot to me and my family. I just returned from San Francisco where I had my two children checked out. Thank God for good news, they had no signs of HCM! What a load off our minds! We will continue to check them yearly as recommended. Once again I want to thank you all for your care and concern.