If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

My Mom doesnt have HCM

Collapse

About the Author

Collapse
gayle Find out more about gayle
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
  • #1

    My Mom doesnt have HCM

    Wow I had an interesting visit with my specialist this week. I knew I had heard my mom's doctors saying she had an enlarged heart. Since I never could get her to tell me what she hsd (SHE HAD NO CLUE ) I finally got her to give me the report from her last echo to take with me for my check up. Guess what her septum is normal. This means that I am the ONLY one in my family to have this. I always knew that was the oddball . Are there alot of others out there who are the first ones in their family to find this?

    I would also like to report that I had a fetal echo today (at 29 weeks) and the little man's heart looks good. He looks like a healthy little guy and already weighs 3.3 pounds. This pregnancy has been so easy and pretty much symptom free I am so happy I just had to share!
    2.6 Septal Measurement
    ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
    "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
    ~Steel Magnolia's~
    Tags: None
  • #2
    Gayle,

    I am not 100% sure that mom does not have HCM, at least some form of HCM. In some people with HCM the heart converts to a dilated form of cardiomyopathy, thus causeing an enlargement of the heart. What are her wall measurements? and what is her ejection fraction?

    GREAT NEWS on the baby -- cant wait to see pictures! Stay healthy and take care of that wonderful family!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment

    • #3
      Lisa is, of course, correct but I also wanted to mention that sometimes the septum isn't very thick anyway -rare, but it happens. HCM is a disease of the entire heart, not just the septum.

      I would take a look at the whole echo report --all walls, etc. and all that Lisa suggested.

      Sorry to burst your bubble, as it were, but it is much more likely that she has it and they just are reading it right.

      Comment

      • #4
        Congrats on that little boy! I know you're beside yourself waiting for him to arrive. I do hope that your mom doesn't have HCM. I'm glad that she's doing well, whether she has it or not.

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment

        Previous template Next

        Today's Birthdays

        Collapse
        Working...
        X