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James now has Gradient

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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • James now has Gradient

    Just wanting some information. James (my 12 year old son) of course had an AICD put in almost two weeks ago in Boston. We went back to the local cardiologist last Tuesday. He did another echo on James and found he had a gradient between 25 and 40. James had not shown a gradient when they did it in Boston. While in Boston, they decided to take him off all medicine since at the time he had no gradient or symptoms. The local doctor put him on Verapamil 120mg. The Toprol had made him so tired he decided to try Verapamil. Since on the Verapamil James has been having flashes of getting really hot, nausea and headaches. I don't know if this is from the gradient or the medicine or just being a 12 year old kid being stressed. I know Verap. is not suppose to make you tired. Also he is complaining of getting tired from just walking from one end of the house to the other. So I am not sure what that is being caused from. Any ideas would be helpful. We are suppose to go back to the local cardiologist in three weeks for another echo. I had left Boston thinking we would not have to deal with medicine or any problems for a long time and I hated that he showed a gradient when we got back. Thanks for your help! Janet
    My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

  • #2
    It may be that the beta blockers were reducing a small gradient and that's why Boston didn't notice it. Call them and make sure the local guy coordinates with them.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Janet,
      Call NEMC and get their opinion and have them work with your local doc. Gradients can increase based on many factors, and at age 12 growth is the likely suspect. Talk to the Boston crew for input.

      Best wishes,
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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