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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • #16
    Janet ,

    I am glad to hear all is going well and today is not so bad weather wise so I am sure you are out enjoying it. I was in Boston on thurs and was thinking of you both. I was 2 floors below the HCM clinic. If it had been Friday I would have tried to meet you. Hope all goes well on Tues., I am sure and confident it will.

    Do you find us northerners a little stand-offish? I have heard that said. Of course I live down near Rhode Island and I think we are a little more country down here. I find it a challenge to go into the big city, hee haww . Got to shake the hayseed out first.

    Best to you both .

    Pam
    Dx @ 47 with HOCM & HF:11/00
    Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
    Lead failure,replaced 12/06.
    SF lead recall:07,extracted leads and new device 2012
    [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
    Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
    Genetic mutation 4/09, mother(d), brother, son, gene+
    Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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    • #17
      Boston Is Beautiful

      Today was much better. We rented a car and drove down to Plimoth Plantation. James really enjoyed how everyone spoke in that period. They asked James if he was "slothful". I liked that word. We went over and saw the Mayflower II and Plymoth Rock. We then drove back and got lost on the way and ended up in Chelsea. Finally we found our way back to the hotel. Tonight we are going to see "Phantom of the Opera".

      I have come across quite a few nicer people. One doctor at the hospital heard me speaking and asked me if I was from Tennessee. Also, I would like to know what happened to the "r" in the alphabet in Boston. It seems no one uses their r's here.

      Anyway, I am really enjoying our trip here. Tomorrow James has to get blood work done tomorrow and then on Tuesday they will do their thing. I had scheduled to go home Wednesday but Dr. Link does not want us to go until Thursday. I am afraid I am going to be hit with the $50 changing fee as well as the difference in airfare rate. We flew Air Tran. Any suggestions as to maybe how I can keep from paying so much?

      Thanks for all your help! We'll be here until atleast Thursday. We'll keep you posted! Thanks Janet
      My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

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      • #18
        That happened to me last year to with Air Tran. I asked that since it was due to a medical emergency and they still said I had to pay the fifty dollar charge. They gave me a voucher on the rest of the ticket price, but it just expired this year because, I found Jet Blue to be a lot cheaper and better. Leather seats and TV for 30 bucks less. So if they fly to where you live that might be an option.

        And the R I noticed that too. Especially when my friends "paked the ca in havad yad" . THey said I absolutly had to go there so they dropped me off in like 20 degree weather eeek. I really don't see what the signifigance of being able to say you've been there. I mean I didn't even get a t-shirt!

        OH, well

        Mary S.

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