Well after an hour delay at the airport, we finally got on the plane about 4:00 p.m. The weather we had in Atlanta caused delays for most planes. The flight was not too bad out here. It was only a two hour flight from takeoff to landing. We were tired when we got here so we only ordered room service and chilled.
Our hotel is right across the street from the hospital. James had a stress test at 11:00 a.m. and then he had an EKG at 12:15 and we saw the doctors at 12:30 p.m. Dr. Martin Maron was wonderful. He confirmed that James definitely had it and that he got his measurements at 1.9 mm. It should be around .9. James does not have an obstruction right now which is good. He does think that it could get larger as he continues to grow. Dr. Link came in also and after looking at all the test and talking about James' dad and Uncle, he decided they definitely need to do the AICD defibulator. They can't get him in on Monday so they are going to do it Tuesday morning. We have to go Monday and have blood work done and then be at the hospital Tuesday at 9:00 a.m. He will stay overnight Tuesday night and if all goes well he will leave the hospital Wednesday. They don't want him to travel until Thursday. So right now we will not go home until Thursday. They also said they did want him coming back here each year to be followed up with the Center here.
We went over to Beth Isreal Hospital where they did a special Cardiac MRI. They put medication in his veins to show contrast with his heart. Once James has the AICD he will not be able to have a MRI again. I will get the results from the MRI on Monday.
James is handling things pretty good. Dr. Maron asked him what he thought about getting an AICD and he said he would feel better with it. After we got back to the room we were listening to the news and they had on there about a 18 year old basketball player that suddenly died on the basketball court. After an autopsy was done, they found that he had the same disease that James has. James heard it and we told him that that could not happen to him once he has the AICD.
So anyway, we will be here for a week and hope to see a few Boston sites. I will say that people here in Boston are not the same as in the South. I have not found any biscuits yet or any sweet tea. Probably won't either.
The doctors did tell us they thought that once he healed he would be able to play rec ball. They talked about how he is a 12 year old child and cannot stop living. With the AICD he will always be protected. Thanks for all your thoughts and prayers. We will keep you posted as we get closer to the surgery! Love, Janet and James
Our hotel is right across the street from the hospital. James had a stress test at 11:00 a.m. and then he had an EKG at 12:15 and we saw the doctors at 12:30 p.m. Dr. Martin Maron was wonderful. He confirmed that James definitely had it and that he got his measurements at 1.9 mm. It should be around .9. James does not have an obstruction right now which is good. He does think that it could get larger as he continues to grow. Dr. Link came in also and after looking at all the test and talking about James' dad and Uncle, he decided they definitely need to do the AICD defibulator. They can't get him in on Monday so they are going to do it Tuesday morning. We have to go Monday and have blood work done and then be at the hospital Tuesday at 9:00 a.m. He will stay overnight Tuesday night and if all goes well he will leave the hospital Wednesday. They don't want him to travel until Thursday. So right now we will not go home until Thursday. They also said they did want him coming back here each year to be followed up with the Center here.
We went over to Beth Isreal Hospital where they did a special Cardiac MRI. They put medication in his veins to show contrast with his heart. Once James has the AICD he will not be able to have a MRI again. I will get the results from the MRI on Monday.
James is handling things pretty good. Dr. Maron asked him what he thought about getting an AICD and he said he would feel better with it. After we got back to the room we were listening to the news and they had on there about a 18 year old basketball player that suddenly died on the basketball court. After an autopsy was done, they found that he had the same disease that James has. James heard it and we told him that that could not happen to him once he has the AICD.
So anyway, we will be here for a week and hope to see a few Boston sites. I will say that people here in Boston are not the same as in the South. I have not found any biscuits yet or any sweet tea. Probably won't either.
The doctors did tell us they thought that once he healed he would be able to play rec ball. They talked about how he is a 12 year old child and cannot stop living. With the AICD he will always be protected. Thanks for all your thoughts and prayers. We will keep you posted as we get closer to the surgery! Love, Janet and James
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