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My pregnant daughter

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Laoshur Find out more about Laoshur
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  • My pregnant daughter

    Good news! My daughter's echo yesterday came out OK. I have asked her to request the echo results so that we can look at things like ejection fraction and septal thickness, but for now we are just grateful that the cardiologist said her tests look good.

    Interestingly enough, her Ob-Gyn has scheduled her for an ultrasound of the baby's heart to make sure that the baby is OK. As far as we know this is just a routine check, although the Ob did say that the baby's heart was quite fast, so they may be a little concerned. Michelle is only 4 months pregnant, so this seems a bit premature to us, especially since her test was negative. Does anyone have any insight on this or have you heard of testing babies this long before birth?

    Thanks! Rhoda

  • #2
    I had a fetal echo when I was pregnant. I think I had it around 20 weeks or so. I don't remember when exactly, but I know that it was recommended for a few weeks after my amnio, and that was at 18 weeks.

    All it is is a more detailed ultrasound where a pediatric cardiologist looks at the anatomy and function of the heart. The heart is developing, obviously, but certain things like septal size and valve function can be assessed this early.

    I obviously knew that I had HCM, so even though there was no reason to suspect a problem, we decided to do it since they had the facilities to do it.
    For your daughter it should be no more uncomfortable than a regular sonogram. If the doctor is nice, they can show her the rest of the baby as well. I had so many ultrasounds when I was pregnant!

    Anyway, congrats on your incipient grandmotherhood. I am sure it is very exciting for your family.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

    Comment


    • #3
      fetal echo

      I had my second ultrasound last week (I am 20 weeks) They looked at the babys heart. They said the septum looked normal and all 4 chambers of the heart looked normal. I asked if there was a way to look more closely given my problem and they said not at this stage, but as far as they could tell all looked normal.
      They also told me it is a very healthy boy .

      Best of luck to your daughter. I hope all goes well and this test proves that she too is carrying a healthy little baby!!
      2.6 Septal Measurement
      ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
      "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
      ~Steel Magnolia's~

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      • #4
        How did it go

        How did the ultrasound of your grandbaby's heart go? Could they tell anything. My OBGYN instsisted I see a high risk OBGYN at least once. After I had to explain to him WHAT HCM is he then told me my baby has it because the septum looks too big. The ultra sound tech spoke up and said it looks normal to her. I hate to tell this guy but I am not putting a whole lot of faith in him since he didnt even know what HCM is or anything about it. He was asking me all kinds of questions..... he seems like a real expert to me .
        I am not going to worry about it if he is born with it then so be it...I still would have had him, but I dont think this Dr has a clue what he is talking about.
        2.6 Septal Measurement
        ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
        "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
        ~Steel Magnolia's~

        Comment


        • #5
          Gayle - Is there a pediatric cardiologist near you that you could get another opinion from? When I was pregnant I had many "regular' ultrasounds and I had a "fetal echocardiogram" which was specifically administered by a pediatric cardiologist to look only at the structure of the heart. Are you near Duke or some other teaching hospital? That is where you would be the most likely to find someone who could do this.
          Daughter of Father with HCM
          Diagnosed with HCM 1999.
          Full term pregnancy - Son born 11/01
          ICD implanted 2/03; generator replaced 2/2005 and 2/2012
          Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

          Comment


          • #6
            baby

            I am about 4 hours away from Duke. I see Dr. Andrew Wang(at Duke) for my HCM - He is fantastic. He said that he wanted to see me towards the end of my second trimester so I am going to see him in May. He has never expressed that he felt there is a need for me to have the baby's heart checked out before delivery. He has suggested that I start having my son checked out at 5 so I figured we would just do the same with our new little one. I am not really worried about it. I truly dont think this OBGYN has a clue what he is talking about. Fortunately, so far, HCM and symptoms are not too bad in my family tree. So I dont anticipate the little one coming with problems from HCM though he may have some later. I know there is a 50% chance he will get this from me, but I had a healthy normal childhood so hopefully he will too.
            I will ask Dr. Wang about all this when I talk to him but I am still disgusted that someone who had to find out what I have from me and knew nothing of it could suddenly be expert enough to diagnose it.
            2.6 Septal Measurement
            ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
            "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
            ~Steel Magnolia's~

            Comment


            • #7
              Gayle - I am glad that you are in good hands at Duke. I was only suggesting a second opinion because:

              1. It might make you feel better because clearly that perinatologist didn't know what he or she was talking about, so it might make you feel better to be examined by someone who did to clear things up;

              and

              2. If there was a problem, it would be better to know about it and treat it at the outset.

              However, clearly this is not an emergency and you could wait until you deliver or after the child is born to get a baseline.

              I personally have had my son screened in utero, at one year, and at 3 years, but that is probably overkill.

              (I only did the 3 year old screening because it was offered by my own doctor for free....otherwise I would probably have waited until 5 also).

              I wish you the best with the rest of your pregnancy. You are gonna have your hands full with a little one running around and a baby! I don't envy you....I am exhausted by my one!!
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

              Comment


              • #8
                Thanks I appreciate you responding. I will ask Dr Wang about a fetal echo. I really trust him. You are right even though I think this Dr(the OBGYN) has no clue it has bothered me a little. I guess the whole reason I posted was because I was hoping someone else would agree that he dont know what he is talking about. You are right though I would probably sleep a whole lot better having someone who does know what they are looking at look at the little ones heart.
                Thanks for the good wishes. Yes I imagine I will be quite busy between my 3 year old and a new born. I will never be bored though .
                2.6 Septal Measurement
                ICD Aug 2010 (pushed into it over 6 abnormal beats...hate it!!!)
                "I would rather have thirty minutes of wonderful than a lifetime of nothing special"
                ~Steel Magnolia's~

                Comment


                • #9
                  Hi, Gayle,

                  Thanks for asking about my grandbaby's echo. He - yes, he's a boy - came out clear. They said he looks healthy and that he played peek-a-boo with them during the echo.

                  I certainly agree that I would ask your HCM specialist to take a look at your baby. Perhaps you could ask that a CD copy of the actual echo you already had be sent to him.

                  Yes, we are excited!

                  Rhoda

                  Comment

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