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Update- not HCM

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Jillmgk Find out more about Jillmgk
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  • Gattaca_1
    replied
    Lisa is of course 100% correct. The septum of an elite athlete with athletes heart will return to normal parameters after de-conditioning. A HCM heart does not. There is a lot of information on this, so do a search, sort fact from fiction and make sure you see a specialist who deals with HCM.

    Best wishes Glen

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  • Pam Alexson
    replied
    Thanks for the update , you and your son have been on my mind. Please let us hear how all goes , we all learn from each new story and each unique situation.

    Regards, Pam

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  • mtlieb
    replied
    Jill,

    Thanks for posting the update. Be sure to let us know how things are going from time to time, and of course we're always here if you need us.

    Jim

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  • Janet McClure
    replied
    Good News

    I am glad to hear that it is probably not HCM. Apparently your son is extremely talented to be involved in so many different sports. I hope that he continues to do well and does not have any problems! Janet

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  • Reenie
    replied
    Thanks for the update. I was wondering about him too. Have a great spring break!

    Reenie

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  • Linda
    replied
    Jill, Thanks for the update, I've been thinking about you, wondering how things are going. I hope you get a definite "no HCM" diagnosis. My prayers are with you and the rest of your family as you deal with the aortic problems. Please keep us posted. Best wishes - Linda

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  • Lisa Salberg
    replied
    This may very well be great news - the best way to know for sure is to "decondition" him for about 3-4 months and repeat the echo. IF the heart is normal at that time you are 100% correct it is Athletes Heart IF it is not in the normal range then it is likely HCM.

    My hopes are with you that this is NOT HCM! Good Luck!!

    Lisa

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  • Jillmgk
    started a topic Update- not HCM

    Update- not HCM

    I posted a few weeks ago, and stirred up a lot of discussion when my son was diagnosed with possible HCM, and his involvement in sports, etc. Well, I thought I'd update you and say that he had more testing last week and they are not terming it hypertrophic cardiomyoapthy now. His septum is mildly enlarged (14 mm) but no obstruction, no arrhythmias, no family history, no symptoms, etc. He has been very very active in sports, with a hectic schedule since last summer, and now they suspect its an "athlete's heart". He will continue to have it monitored on a regular basis, but they continue to say he has no limitations. (Now basketball is done, and he is playing baseball and doing field- shot-put and discus- for his school.)

    The septal enlargement was caught when they were screening for a hereditary aortic root enlargement, which he does not have. My other son does have a mild form of aortic root enlargememnt however. I guess we are big-hearted people!

    Anyway, I wish all of you best wishes and offer my prayers for everyone and their family members dealing with HCM. I appreciate all of the information you provided when I really needed it, and the concern you had for my child even when I didnt like what you had to say! Take care!
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