If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Update- not HCM

Collapse

About the Author

Collapse

Jillmgk Find out more about Jillmgk
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Update- not HCM

    I posted a few weeks ago, and stirred up a lot of discussion when my son was diagnosed with possible HCM, and his involvement in sports, etc. Well, I thought I'd update you and say that he had more testing last week and they are not terming it hypertrophic cardiomyoapthy now. His septum is mildly enlarged (14 mm) but no obstruction, no arrhythmias, no family history, no symptoms, etc. He has been very very active in sports, with a hectic schedule since last summer, and now they suspect its an "athlete's heart". He will continue to have it monitored on a regular basis, but they continue to say he has no limitations. (Now basketball is done, and he is playing baseball and doing field- shot-put and discus- for his school.)

    The septal enlargement was caught when they were screening for a hereditary aortic root enlargement, which he does not have. My other son does have a mild form of aortic root enlargememnt however. I guess we are big-hearted people!

    Anyway, I wish all of you best wishes and offer my prayers for everyone and their family members dealing with HCM. I appreciate all of the information you provided when I really needed it, and the concern you had for my child even when I didnt like what you had to say! Take care!
    Jill

    mother of Kyle, now 19 yrs old- diagnosed after 5 years and 2 years later "undiagnosed"

  • #2
    This may very well be great news - the best way to know for sure is to "decondition" him for about 3-4 months and repeat the echo. IF the heart is normal at that time you are 100% correct it is Athletes Heart IF it is not in the normal range then it is likely HCM.

    My hopes are with you that this is NOT HCM! Good Luck!!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Jill, Thanks for the update, I've been thinking about you, wondering how things are going. I hope you get a definite "no HCM" diagnosis. My prayers are with you and the rest of your family as you deal with the aortic problems. Please keep us posted. Best wishes - Linda

      Comment


      • #4
        Thanks for the update. I was wondering about him too. Have a great spring break!

        Reenie
        Reenie

        ****************
        Husband has HCM.
        3 kids - ages 23, 21, & 19. All presently clear of HCM.

        Comment


        • #5
          Good News

          I am glad to hear that it is probably not HCM. Apparently your son is extremely talented to be involved in so many different sports. I hope that he continues to do well and does not have any problems! Janet
          My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

          Comment


          • #6
            Jill,

            Thanks for posting the update. Be sure to let us know how things are going from time to time, and of course we're always here if you need us.

            Jim
            "Some days you're the dog... some days you're the hydrant."

            Comment


            • #7
              Thanks for the update , you and your son have been on my mind. Please let us hear how all goes , we all learn from each new story and each unique situation.

              Regards, Pam
              Dx @ 47 with HOCM & HF:11/00
              Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
              Lead failure,replaced 12/06.
              SF lead recall:07,extracted leads and new device 2012
              [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
              Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
              Genetic mutation 4/09, mother(d), brother, son, gene+
              Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

              Comment


              • #8
                Lisa is of course 100% correct. The septum of an elite athlete with athletes heart will return to normal parameters after de-conditioning. A HCM heart does not. There is a lot of information on this, so do a search, sort fact from fiction and make sure you see a specialist who deals with HCM.

                Best wishes Glen
                \"There is no GENE for the human spirit\"

                Comment

                Today's Birthdays

                Collapse

                Working...
                X