If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

My daughter trip to DC/NY

Collapse

About the Author

Collapse

mflanagn RN at a Trama 2 center, 2 children, 2 dogs Find out more about mflanagn
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • My daughter trip to DC/NY

    Hi everyone, my daughter is going on a 5 day trip to DC/NY with her 8th grade class next week. I'm really excited for her to go, but at the same time I'm nervous about the medications. There will be 78 kids with 6 adult chaperons. I talked to the trip leader last night and the chaperon assigned to Krista's medications. Its tricky to make sure she gets her 3 doses of propranolol a day and her coumadin at night. She takes 4 pills on Tuesday night and Thursday night before bed and 3 pills Mon, Wed and Fri. I asked them if I could send along the 7-day pill box with her evening meds already in so they didn't have to figure out which pills she has to take when. They said that is fine, put her name on it and tape it shut. I was very relieved. Can you imagine my worry the whole time she is on the trip. Also the trip leader said Krista can have responsibility of her night time meds and keep them in her room with her. That relieved me even more, because Krista is very good about taking her pills before bed.

    I also worry she will get tired out. They have jam packed this trip, I think they plan to see every available tourist spot in DC and NY. I hope they have rest periods set for the kids.

    Also does any know if a artificial heart valve will set off security? We haven't traveled since 2000. The security has changed since then. Should I send along the card for the artificial heart valve with her?

    Thanks for listening.
    Michelle - mom to Krista and Tyler both HCM
    Krista surgeries: 3/97 myectomy, 2/99 mitral valve replacement
    Tyler surgery: 1/98 myectomy

  • #2
    I don't think the new valve will set off security. I've had family members who have been in that situation and had no problems. I hope that Krista has a wonderful time! It sounds like the chaperons are very willing to work with both of you. Please give us a report when she gets back.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Michelle,

      Send a copy of the valve card and pertinent med info, just in case of emergency. I assume she will be flying. My ticketing info has said meds must be in the RX container. I carry the daily pill box with the RX containers. She should have this in carry-on, not checked. You don't want meds to be separated if bags don't arrive with her flight.

      Just an FYI - device companies will print out duplicate cards for minors. We always had 3 cards, one for me, one for my husband, and one for my son to carry. Three different major device companies have done this for us, so you should not have any problem getting extra cards. You might find it to be handy.

      Krista must be very excited! I hope she has a great time! Linda

      Comment

      Today's Birthdays

      Collapse

      Working...
      X