If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


No announcement yet.



About the Author


Lisa Salberg Find out more about Lisa Salberg
  • Filter
  • Time
  • Show
Clear All
new posts

  • NEVER say NEVER!

    I want to share a little story of one of our non message board HCMA members.

    About 8 years ago I met a man from California - his family happen to live in NJ not far from me. He was diagnosed with HCM, was in need of an ICD and his dad was on the transplant list. When we first met he told me he would NEVER marry and NEVER have children. I asked him to not be so sure and to leave these wonderful experiences open in his future.

    a few years pass and I get a wedding invitation - I was honored and thrilled that he had in fact opened his heart to a wonderful girl and that he was very happy!

    The wedding was a few years ago and they have been living happily in Ca. ever since.

    GUESS WHAT????
    I recieved a call yesterday and in October he is to be a DADDY! He and his wife are very happy!

    I know people hate when they are told " I told you so" - but in this case I had to use that old line on my dear friend.

    The moral of my little tale... Never say Never - life is wonderful and has many adventures in store for you all - Please do not let HCM stand in the ways of fulfilling YOUR dreams!

    Peace to all,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    What a great story. It reminds me that there are plans for our lives that we can't comprehend until the time is right. Congrats to your friend!


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    Today's Birthdays