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My kid's father home from alcohol ablation.

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Janet McClure Single mother to two amazing kids. James is 13 and has HCM. Emily is 11 and recovering from TBI. Find out more about Janet McClure
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  • My kid's father home from alcohol ablation.

    My kids dad had an alcohol ablation done Friday at Duke University. His septum measured about 45 at beginning of procedure. Once they did the ablation, it reduced to half immediately. He spent one night in ICU, in regular room on Saturday and home on Sunday. It's amazing what they can do now. He told the kids he already feels so much better. It made my son, who was diagnosed in January feel so much better knowing that his dad now is doing much better. His shortness of breath is better and overall feels good! He had been having a pretty difficult time prior to having this procedure done! I was just wondering do they ever do an alcohol ablation on kids? From what I have read it is normally in people older. Their dad is 42.

    Anyway, just was so impressed at how great the procedure went.
    My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

  • #2
    I'm glad that he's doing so well. I hope that he continues to recover without incident. The reason they don't like to do alcohol ablations on younger people is in part the lack of long-term data on the patients's following the surgery. Myectomies have much more history, therefore much more documentation on how the patients are doing 5, 10, 20 years down the road. I'm sure Lisa can give you more info on this.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Janet

      I'm very glad your ex husband is ok and is rest better give him our best

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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      • #4
        Glad to hear he is doing well. Best wishes for continued healing and strength.

        Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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        • #5
          Janet,

          I'm so glad to hear that his ablation went well! Woo hoo! Ablation as a treatment option for HCM is still relatively new (about ten years i think) whereas the myectomy has been around for about 50 years. Most docs still opt for myectomy... not because ablations don't work or because we shouldn't support new technologies... but simply because they know myectomy works and it has a long history of success.

          Please continue to keep us posted on how your children and their father are doing, and of course we're here for you any time you need advice or a place to vent your frustrations.

          Jim
          "Some days you're the dog... some days you're the hydrant."

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          • #6
            In short it is not advised to do an ablation on a young person (defined as under 50). In a document issued by all of those who specialize in the care of those with HCM it is clearly stated that ablations are only appropriate for a small subsection of people with HOCM. As we have no long term data on the outcome of ablation it is unwise to want to produce myocardial scar on a child when we have no idea of what remodeling may occur in 20 years. Myectomy on the other hand has a long term track record and has been proven safe time and time again in children and adults.

            Best wishes to the entire family,
            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

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