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A patient writing from a daughters point of view

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  • #1

    A patient writing from a daughters point of view

    My mom and I both have HCM and a few hours ago she had her ICD replaced. Most the time I post things on here from a patients point of view, but this time I am doing it from a daughters point of view. If it weren't for this website and the support that it gives everyone, I don't think that I would be posting this right now because I honestly believe that it has helped my mother to push for survival. I just wanted to say THANK YOU to everyone and let you know how inspirational and beautiful each and everyone of you are. It is amazing that she went in to the hospital a few hours ago and is now on her way home.
    Thank you,
    Christian Peachey
    Although being diagnosed with HCM was the end of the world for me, it has opened up a beautiful new world for me too. \"To thine ownself be true.\" ~Polonius
    Tags: None
  • #2
    I'm glad that we've been there for your mom. I hope her recovery is fast and as pain-free as possible.

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #3
      Isn't it amazing how medical treatment is now, i wish the very best for your mother and yourself and make sure she keeps that arm down i put mine in a sling to help especially when i slept becouse i do put my arms over my head when i sleep Take care

      Shirley
      Diagnosed 2003
      Myectomy 2-23-2004
      Husband: Ken
      Son: John diagnosed 2004
      Daughter: Janet (free of HCM)

      Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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      • #4
        Christian,

        Happy to hear from you. It is so good to know that we all make a difference in each others HCM lives. That goes especially to you for thoughtfully remembering and reminding us all of how very lucky we are to have this place called the HCMA.

        Hope your mom is back up and functioning well soon. She must be very proud of you.

        Pam
        Dx @ 47 with HOCM & HF:11/00
        Guidant ICD:Mar.01, Recalled/replaced:6/05 w/ Medtronic device
        Lead failure,replaced 12/06.
        SF lead recall:07,extracted leads and new device 2012
        [email protected] Tufts, Boston:10/5/03; age 50. ( [email protected] 240 mmHg ++)
        Paroxysmal A-Fib: 06-07,2010 controlled w/sotalol dosing
        Genetic mutation 4/09, mother(d), brother, son, gene+
        Mother of 3, grandma of 3:Tim,27,Sarah,33w/6 y/o old Sophia, 5 y/o Jack, Laura 34, w/ 5 y/o old Benjamin

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        • #5
          It is great you and your mom have a tight relationship like this and I also feel like everyone one here is like a extended part of the family to me it not closer than family's can be. There is so much to share here, a great place to be when nobody else understands how hard hcm can be to deal with.
          I am happy your mom got her ICD and YOU and I wish the best to you both.
          Jen

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          • #6
            I hope your mom recovers great! I feel the same way about this forum. You don't feel like you're the only one dealing with this disease. It has helped me tremendously. I come home every evening and get on to read what's going on and respond when I can!

            Janet
            My son James, Age 18, diagnosed in January, 05. AICD - 4/5/05 at Tufts NEMC. Myectomy -1/25/06 at NEMC. Currently having heart failure issues. James' father and uncle both have HCM and AICDs. James dad, Carlton, had Myectomy at Cleveland on 4/10/06. James Medtronic recalled lead fractured 5/26/11. Had Biventricular Cardiac Resynchronization AICD put in on 6/3/11 Emory Midtown.

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            • #7
              Please send my best wishes to your mom. I am glad that the HCMA has been here to provide you and your mom with support and friendship.

              Lisa
              Knowledge is power ... Stay informed!
              YOU can make a difference - all you have to do is try!

              Dx age 12 current age 46 and counting!
              lost: 5 family members to HCM (SCD, Stroke, CHF)
              Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
              Therapy - ICD (implanted 97, 01, 04 and 11, medication
              Currently not obstructed
              Complications - unnecessary pacemaker and stroke (unrelated to each other)

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