Hi my name is Gail,
My husband has HCM and our 9 year old is waiting her results we have 2 more weeks until we find out. You would think with all of the modern tech we wouldn't have to wait and go through all of this for three weeks.
All of this just happened to us in November when my husband collapsed at work with what they thought at the time was a heart attack. He is 38 yrs old and is very fit and athletic and has never has any problems that we knew of until now. He was shocked back to life 2 times and was given CPR, by a police man who just happened to be at the street that they just passed, transfered to a Major hospital in Phila. and had a defib placed and sent home with a promise that he will be able to resume his life where he left off. NOT SO my husband is a train engineer with 2 weeks left in his training program, we just bought a new house 6 months ago and it needs allot of work that now he can not do. In the state that I live in, if you pass out due to any type of medical condition you are not allowed behind the wheel of a car for 1 year. He is not eligible for disability, workman's comp or SSI. His job does not know what to do with him since he can not finish his training. This is not where he left off with his life.
He is having a hard time dealing with all of this and I don't blame him, but I was looking at it like he was given a second chance and that we need to make the most of it. Until they brought in genetics and now I find myself not being so upbeat as they explain that our daughter at the age of 9 may carry this and if so, so may her children. It just keeps getting better and better. I don't mean to sound bitter but, I've been the family cheerleader and now my pom-poms are tiring.
If anyone has any good stories I would love to hear from you. I can't hear anymore from these doctors, every time they explain something to me I just get more confused and upset. I could really us some help.
Waiting to hear from you.
Gail



My husband has HCM and our 9 year old is waiting her results we have 2 more weeks until we find out. You would think with all of the modern tech we wouldn't have to wait and go through all of this for three weeks.
All of this just happened to us in November when my husband collapsed at work with what they thought at the time was a heart attack. He is 38 yrs old and is very fit and athletic and has never has any problems that we knew of until now. He was shocked back to life 2 times and was given CPR, by a police man who just happened to be at the street that they just passed, transfered to a Major hospital in Phila. and had a defib placed and sent home with a promise that he will be able to resume his life where he left off. NOT SO my husband is a train engineer with 2 weeks left in his training program, we just bought a new house 6 months ago and it needs allot of work that now he can not do. In the state that I live in, if you pass out due to any type of medical condition you are not allowed behind the wheel of a car for 1 year. He is not eligible for disability, workman's comp or SSI. His job does not know what to do with him since he can not finish his training. This is not where he left off with his life.
He is having a hard time dealing with all of this and I don't blame him, but I was looking at it like he was given a second chance and that we need to make the most of it. Until they brought in genetics and now I find myself not being so upbeat as they explain that our daughter at the age of 9 may carry this and if so, so may her children. It just keeps getting better and better. I don't mean to sound bitter but, I've been the family cheerleader and now my pom-poms are tiring.
If anyone has any good stories I would love to hear from you. I can't hear anymore from these doctors, every time they explain something to me I just get more confused and upset. I could really us some help.
Waiting to hear from you.

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