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Brian, 9 has gradient of 200 and is going for a myectomy/ICD

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Sheila and Paul We are a family of four - Brian has had a myectomy 2006. Find out more about Sheila and Paul
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  • #16
    I hope he continues to do well and that he feels a lot better very soon!

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

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    • #17
      sheila and paul. Iam praying for Brian and your family I cant imagen how difficult this is for both of you as parents.I have two children whom I love dearly.praying for your son to have a speedy recovery God bless you
      One day at a time.

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      • #18
        Sheila and Paul,

        I'm so glad to hear that Brian's surgery went well, and also that he's got that darn breathing tube out already! I'm a big 42 year-old baby myself and i hated having that tube in. I'd be willing to bet that Brian handled it better than i did.

        We'll all be thinking of you here, and hoping for the speediest possible recovery period for Brian. Kids bounce back so fast, he'll be out running around before you know it.

        Abby, thanks for keeping us posted.

        Take care,

        Jim
        "Some days you're the dog... some days you're the hydrant."

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        • #19
          Iam so glad things went well Brian will be running and playing before you know it, please keep us updated on his recovery

          Shirley
          Diagnosed 2003
          Myectomy 2-23-2004
          Husband: Ken
          Son: John diagnosed 2004
          Daughter: Janet (free of HCM)

          Grandchildren: Drew 15,Aaron 13,Karen 9,Connor 9

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          • #20
            Hi again:

            I forgot to mention that Brian "only" had his myectomy done. The doctors are going to do the ICD at a later date.

            I'll be sure to pass on everyone's messages for Brian.

            Abby

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            • #21
              Thanks Abby.

              It is so good to know that someone else is on the way to managing this disease and living life well.

              Peace.

              Leon
              God Squad co-moderator
              Nothing is as gentle as strength and nothing is as strong as gentleness

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              • #22
                Brian

                Hi everyone. First of all thank you all for your support and prayers. Brian seems to be doing OK. He has a collapsed left lower lobe and a lot of fluid in his lungs right now - they gave him a dose of lasix. He is now on tylenol for pain and off the morphine.

                I am a little emotional (Abby and her wonderful daughter can attest to that). I was happy to have met up with Abby - as like everyone else on this site, she is a wonderful person.

                I am going to get a bite to eat, but it does not seem enough to just say thank you all for the support, but thank you all for the support. I will try and keep you posted.

                I love you all.

                Sheila
                Sheila

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                • #23
                  Shelia,
                  You are in our thoughts and prayers. Stay strong and you will be over the hump and on your way to recovery! Tell Brian that all his HCM friends are sending him lots of love and that we all are thinking of him and know he is going to be feeling really great soon!

                  Big HUGS!
                  Lisa
                  Knowledge is power ... Stay informed!
                  YOU can make a difference - all you have to do is try!

                  Dx age 12 current age 46 and counting!
                  lost: 5 family members to HCM (SCD, Stroke, CHF)
                  Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                  Therapy - ICD (implanted 97, 01, 04 and 11, medication
                  Currently not obstructed
                  Complications - unnecessary pacemaker and stroke (unrelated to each other)

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