Tom died of HCM 11/14/04. He had no symptoms. He was not a athlete. He was 11 years old. Tom has 2 brothers and 1 sister. Bryan age 14 was tested and his tests came back clear. Lexie and Lane are Tom's 1/2 siblings. They were tested today. Lexie age 4 tested clear. Lane age 6 months had the echo done 1st. Everything came out normal. Then he had the ekg. The test showed a possibility of left ventricular hypertrophy. We had the same ped. cardiologist Dr. look at the results and he told us they were normal and that the abnormal reading was do to the fact that he was moving around and not to worry.
The Dr. also told us that we should not worry because if they didn't show anything now they probably would never develope the disease. He told us to get the kids tested in 5-6 years again to be safe. Is this correct? How accurate is the genetic testing? Could we all be tested and have peace of mind? There is no family history of HCM. Could HCM be a spontaneous mutation in my son Tom?
The Dr. also told us that we should not worry because if they didn't show anything now they probably would never develope the disease. He told us to get the kids tested in 5-6 years again to be safe. Is this correct? How accurate is the genetic testing? Could we all be tested and have peace of mind? There is no family history of HCM. Could HCM be a spontaneous mutation in my son Tom?
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