My son was diagnosed with HCM within a day of his birth. Right now the
HCM is idiopathic. He was negative for Barth's Syndrome and all
metabolic causes of the disease have been all but ruled out. My wife,
older son, and I are going have echos as this is usually a genetic
disorder.
His HCM is non obstructive and he is currently taking the beta blocker
enderol. He is asymptomatic now, and seemingly a normal baby. His
last two echos have indicated that the septum is continuing to enlarge,
but that it was within limits that were not too concerning to the
cardiologist. To me, enlargement is enlargement and can only have one
conclusion.
My questions are, will this continue to progress? Can he live to be an
adult? I just don't know what to expect and that is the hardest part.
I have a scientific mind, I find comfort in understanding, my wife on
the other, hand just knows she has a sick baby. I can't ask these
questions in front of her.
Thanks,
Chris
HCM is idiopathic. He was negative for Barth's Syndrome and all
metabolic causes of the disease have been all but ruled out. My wife,
older son, and I are going have echos as this is usually a genetic
disorder.
His HCM is non obstructive and he is currently taking the beta blocker
enderol. He is asymptomatic now, and seemingly a normal baby. His
last two echos have indicated that the septum is continuing to enlarge,
but that it was within limits that were not too concerning to the
cardiologist. To me, enlargement is enlargement and can only have one
conclusion.
My questions are, will this continue to progress? Can he live to be an
adult? I just don't know what to expect and that is the hardest part.
I have a scientific mind, I find comfort in understanding, my wife on
the other, hand just knows she has a sick baby. I can't ask these
questions in front of her.
Thanks,
Chris
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