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If this is your first visit, be sure to
check out the FAQ by clicking the
link above. You may have to register
before you can post: click the register link above to proceed. To start viewing messages,
select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.
I had my kids screened for HCM a few weeks ago. I'm still trying to get actual measurements and other data, but it looks like they're all clear for now. The problem is, as it was last year, that for 2 of the 3 kids the report says the reason for the tests is "Cardiomyopathy, Dilated." I've called and asked to talk to someone about this. I don't know what the problem is, the doctor wrote the order correctly. I watched him do it. Gee, can't we ever get this right?
Reenie
Reenie
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Husband has HCM.
3 kids - ages 23, 21, & 19. All presently clear of HCM.