Good Day Everyone!
I wasn't sure how to title it, hopefully I will be able to get some help with this ...
Here is my struggle ... and I am writing this with those broken eggshells under foot ...
My family doesn't always "listen" very well ... and as we all get, sometimes we think that our conversation "about the color of the sky" is more important ...
Well, right now, with all of this fresh, with trying to get my husband, children and father-in-law the appropriate needed care, I think that my conversation is of the utmost importance and I want EVERYONE to listen and respond ...
Sadly,
, I am not getting too good of a response ...
I am getting a lot of, well there is nothing really wrong with Warren, as you can see his Dad has had it all his life and he is fine, so Warren will be fine - I don't know why you are going thru all the efforts and troubles, there is nothing wrong ...
And, as I am trying to find out the family history, so we can discover if there is another HCM, I am getting a "you are making a big deal out of nothing" or I am simply being ignored, they change subject or just sit in awkward silence as if I have said nothing at all ...
Since it is so fresh, should I just let things be still for a while ...
I thankfully have found so much helpful information here at this website, from Lisa, Dr. M. Maron, and I am so excited that my husband is going to Tufts next week and that we are going to get answers, and soon my husband will start feeling better ... I guess I just wanted to be able to go with as much information as possible next week, and am so frustrated that people won't talk with my "most important conversation"
If anyone can share with me that would be great!
I have tried the "if you could share info that would be great for helping Leilani and Jacob" (our kids) ...
I am so enjoying learning, I am getting so excited by what I am learning - I am just thriving from all the knowledge, and maybe I am simply being obsesive with wanting to learn more ...
I've rambled - THANK YOU SO MUCH FOR LETTING ME VENT THIS FRUSTRATION!!!
Hope everyone is enjoying this wonderful weekend! We are having a treasured family day!
Bye for now!
I wasn't sure how to title it, hopefully I will be able to get some help with this ...
Here is my struggle ... and I am writing this with those broken eggshells under foot ...
My family doesn't always "listen" very well ... and as we all get, sometimes we think that our conversation "about the color of the sky" is more important ...
Well, right now, with all of this fresh, with trying to get my husband, children and father-in-law the appropriate needed care, I think that my conversation is of the utmost importance and I want EVERYONE to listen and respond ...
Sadly,

I am getting a lot of, well there is nothing really wrong with Warren, as you can see his Dad has had it all his life and he is fine, so Warren will be fine - I don't know why you are going thru all the efforts and troubles, there is nothing wrong ...
And, as I am trying to find out the family history, so we can discover if there is another HCM, I am getting a "you are making a big deal out of nothing" or I am simply being ignored, they change subject or just sit in awkward silence as if I have said nothing at all ...
Since it is so fresh, should I just let things be still for a while ...
I thankfully have found so much helpful information here at this website, from Lisa, Dr. M. Maron, and I am so excited that my husband is going to Tufts next week and that we are going to get answers, and soon my husband will start feeling better ... I guess I just wanted to be able to go with as much information as possible next week, and am so frustrated that people won't talk with my "most important conversation"

If anyone can share with me that would be great!
I have tried the "if you could share info that would be great for helping Leilani and Jacob" (our kids) ...
I am so enjoying learning, I am getting so excited by what I am learning - I am just thriving from all the knowledge, and maybe I am simply being obsesive with wanting to learn more ...
I've rambled - THANK YOU SO MUCH FOR LETTING ME VENT THIS FRUSTRATION!!!
Hope everyone is enjoying this wonderful weekend! We are having a treasured family day!

Bye for now!
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