If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you

Announcement

Collapse
No announcement yet.

Wife Diagnosed with End-Stage HCM

Collapse

About the Author

Collapse

SteveT Find out more about SteveT
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Abbygirl2
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Many blessings as you and your family travel this rocky road. I hope you get the heart you need, for you and your loved ones.

    Pam

    Leave a comment:


  • Burton Borrok
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Dear Beverly,
    You are absolutely right in your posting – hitting the nail right on the head. The road ahead is getting tough – there are always rough spots in the highway of life – that’s one of the things that make it so interesting. While your bouncing around in the cab of your life, you must keep in mind that somewhere up ahead the road will smooth out again and normality will return. Midge Rollins has blazed the trail, and we all love her here. By all means ‘talk’ with her, as she has offered. I’ll bet she can emolliate many of your fears and concerns. She is “real good people.”

    When I graduated from the eighth grade, a few short centuries ago, I recited the following poem in the commencement exercises. It has stood me in good stead through the years. I offer it to you in the hopes it might help you along the way too.

    Invictus

    OUT of the night that covers me,
    Black as the Pit from pole to pole,
    I thank whatever gods may be
    For my unconquerable soul.

    In the fell clutch of circumstance
    I have not winced nor cried aloud.
    Under the bludgeonings of chance
    My head is bloody, but unbowed.

    Beyond this place of wrath and tears
    Looms but the Horror of the shade,
    And yet the menace of the years
    Finds, and shall find, me unafraid.

    It matters not how strait the gate,
    How charged with punishments the scroll,
    I am the master of my fate:
    I am the captain of my soul.

    Leave a comment:


  • angall
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Hi Beverly

    I was so glad to read your post with such confidence. I moved to Minnesota about 3 yrs. ago and I go to the Mayo Clinic for check-ups and to have my ICD interrogated. Sometimes I visit due to CHF (not by choice). I live about a 2 hrs. drive from Rochester. Maybe we will meet someday while getting check-ups Keep the faith. You are young and you have so many people praying for you. I'm sure you can count on all of us here to include you in our prayers. Should you want to talk, Midge sounds like she knows the ropes having been there recently. If you need to just communicate, post here on this site, everyone here is so friendly and listen well.
    Take care and please keep us informed.
    May God Bless you and keep you in his loving hands.

    Leave a comment:


  • Beverly
    replied
    Re: Wife Diagnosed with End-Stage HCM

    To everyone,

    Thank you all for your kind words of hope and encouragement. MY family and I need that. Steve has been such a blessing to me from the start, never caring if we had biological children to now up and moving so I can get the best care. I am not afraid of the days to come for me only for my husband and 4 adopted children. I know that whatever God's plan is that it is divine and his purpose is always for good. Please keep us in your thoughts and prayers as the road toughens.

    Take care and God bless!
    Beverly

    Leave a comment:


  • Midge Rollins
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Steve, I just found your post and Sarah is right I had a heart transplant on Mar. 19-04. I had mine in Rochester Mn. I live in Iowa. Please feel free to pm me with any concerns or questions. I am 57 y.o. and am doing better post transplant then pre transplant. I had had HCM since I was 27. The hardest part of the transplant program is waiting for your heart to come. Keep in mind she is in good hands and it will come. Please let me know if I can help.

    Leave a comment:


  • jujemendoza2002
    replied
    Re: Wife Diagnosed with End-Stage HCM

    stev and bev, I am so sorry to hear about how hard things are going or you and I to admire you stregnth in dealing with hard times so well and staying close and I'll be praying that things will get better. GOD BLESS YOU!

    Leave a comment:


  • Linda
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Steve and Bev, I too, want to wish you the best and will keep you in my prayers. Beverly is not a real common name, but it's my sister's name also. Linda

    Leave a comment:


  • Sarah
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Dear Bev and Steve,

    I'm glad you found us. You have a hard road ahead of you but it sounds like you have all the love, support, and medical care anyone could ever ask for.

    Midge, one of the members here, recently had a transplant. You should check and see if she can talk to you about the process. She may have put her contact info in the member directory.

    I wish you all the best and keep us posted,

    Sarah

    Leave a comment:


  • angall
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Dear Beverly and Steve
    It broke my heart to hear of someone so young to receive the diagnosis you had to endure. Having support in this type of situation makes a person stronger. Please keep the attitude you have now. I will include you in my prayers.

    Leave a comment:


  • cynthiaG
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Steve and Beverly,

    I wish you both the very best and hopefully soon everything will fall into place. My thoughts and prayers are with you.

    Cynthia

    Leave a comment:


  • Reenie
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Bev, Steve, thank you both for sharing your story. I'm so pleased that you have found what a true specialist can do for you. The news you are having to digest isn't great, but now you have options that you didn't have before. Steve, I'm impressed with your company for being so accomodating. Keep up the good work.

    Reenie

    Leave a comment:


  • Ronnie
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Steve & Bev
    I'm so sorry to hear about your situation, but happy to hear your do have a "Plan". It sounds like you will both be capable, Strong & Loving enough to see this Plan thru.
    Always remember The Power of Prayer. We will all be praying for you both
    BE WELL

    Leave a comment:


  • Lisa Salberg
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Bev is a wonderful person who has the right attitude to deal with her situation. I remain impressed with her outlook and know she has the support around her that she needs!

    Bev contacted us a few weeks ago and was able to get a quick start on seeing a specialist. I am very happy the HCMA was able to assist her on her road to feeling better.

    Best wishes to your entire family!

    Lisa

    Leave a comment:


  • mtlieb
    replied
    Re: Wife Diagnosed with End-Stage HCM

    Steve and Beverly,

    I very much admire your strength and perseverence in dealing so well with Beverly's diagnosis! You are both in my thoughts and prayers today as you continue to try to get this all sorted out.

    Take care,

    Jim

    Leave a comment:


  • shirleymahoney
    replied
    Re: Wife Diagnosed with End-Stage HCM

    I live here in virginia and i go to richmond Virginia and see a doctor by the name Dr. Gilligan. Where in virginia did you live, i hope that everything works out for you Bev, your family will be in my prayers

    Shirley

    Leave a comment:

Today's Birthdays

Collapse

Working...
X