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It's been a while since I wrote. Update on me...myectomy a year ago May 1 at Mayo clinic continues to go well. However my brother was admitted into the hospital last week and was told that his heart muscles are weakening and he is going into the "dilated" stage of HCM. Because his septum thickness isn't as thick as mine and in a different area, a myectomy isn't an option for him. I'm trying to talk him into seeing my doctor at Mayo, but that's another story. My question is...since I had a myectomy, will I follow the same path as him? Can my heart muscles weaken also or since I had the myectomy will this prevent my muscles from weakening? PS: I am 32 and my brother is 45.
They have switched his medicines, lowering his blood pressure. Is there anything else that may help him?
Ok, another problem. My son age 4 also has HCM. I had a nephew who passed away suddenly at school age 10. My son's condition worsened from last year to this year. Not sure what his thicness is, don't have the results in front of me. I was told it was a "normal" change for his growth. They put him on a halter monitor which showed no problems. If there are any changes this year. they are placing a defibrillator in him next year. We carry a portable one with us now. While at the Mayo for myself, they had asked if I was going to bring my son to them. I told them I would wait until things started changing. Does the Mayo Clinic in Minnesota deal with children much with HCM? Is there a better place to take a child? I trust my doctor here in St. Louis and have talked to Lisa about Dr. Rhee. (You may recall meeting him at a seminar about a year ago) Please let me know your thoughts. THANKS for all you do. You have been VERY helpful in the past!!
They have switched his medicines, lowering his blood pressure. Is there anything else that may help him?
Ok, another problem. My son age 4 also has HCM. I had a nephew who passed away suddenly at school age 10. My son's condition worsened from last year to this year. Not sure what his thicness is, don't have the results in front of me. I was told it was a "normal" change for his growth. They put him on a halter monitor which showed no problems. If there are any changes this year. they are placing a defibrillator in him next year. We carry a portable one with us now. While at the Mayo for myself, they had asked if I was going to bring my son to them. I told them I would wait until things started changing. Does the Mayo Clinic in Minnesota deal with children much with HCM? Is there a better place to take a child? I trust my doctor here in St. Louis and have talked to Lisa about Dr. Rhee. (You may recall meeting him at a seminar about a year ago) Please let me know your thoughts. THANKS for all you do. You have been VERY helpful in the past!!
) Oh, How do you get the Emoticons in your messages?
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